Help please with finding retained reflexes practitioner

[Beachcat]

Has anyone had any experience with brushing and/or movement exercises for retained reflexes syndrome ?

Loads of us have done so, with great success. Search 'retained reflexes'.

If you tell me where in the country you are I can try to recommend someone.

Depends where you are. I'm in Hertford and we see Ann Finch. Massive improvement in my son.

Thank you for your replies - this is my first post by the way. We are in the South West - Somerset/Dorset border and there seems to be very little around here. If you have a recommendation in this area Indigobell I would be v grateful. I can go to London if need be. Do you have any views on the Sound Learning Centre or David Mulhall? I will look up Ann Finch - thank you minnisota. I am considering INPP even though Chester is a very long way for us. Do you have any views? Also do you have any views on effectiveness of brushing versus exercises? Thank you again for replying.

We do brushing with DD a couple of times a day. My understanding is that it is meant to stimulate the body to release endorphins making the child more organised and calmer. We do it alongside exercises so it's hard tell if brushing alone would make a difference. Personally, I think not as it seems only a temporary state ie you brush and may see good effect for an hour or so but I do believe that exercises can make a big difference - Sally Goddard has written a book I can't remember the title at the moment but it has been proven that certain exercises carried out over a period of time can help a child with their development.

Thank you for your message Eveiebaby, and for sharing your experience of both.

Hiya-we also used Ann Finch for a while and she is INPP trained and great but was quite a long way for us to travel so used Hemispheres. They are expanding so may be closer to you. We have seen great changes in DS following this and we have just completed The listening Programme with Hemispheres again with further improvement. I am now actually going to see Bob Allen in Windsor (brushing) just to fine tune it all!!
HTH

By the way-the Sally Goddard book is a great read but I also cant recall the title..The ABC of Learning and Movement? Something like that...

We've been to Sound Learning Centre and were very pleased with it. I would highly recommend them. They cured about 90% of DSs ASD, and about 40% of DDs Dyslexia.

Someone else on here has been to David Mulhall, and also highly recommends him.

However, I've now switched to Tinsley House, and think he is even more amazing than SLC.

I would probably recommend you start with TH rather than SLC - depending on the age of your son and his problems.......

Message me if you want more info.

Thank you oddgirl and indigobell for your help. I am going to do some further research and look into Hemispheres, TH and SLC. Thank you again, these are great leads.

Hi Walsingham, thank you so much for this tip. Having thought I would have to go to London or even Chester, I can't believe there is someone quite near us. I will follow up all leads and then decide. Thank you to all of you!

Hi all,

Sorry to barge in here, we have also just found out that our DD aged 7 1/2 has retained reflexes. What a relief to know, but we are now looking for a practitioner. And I did look at the INPP page, but I would love recommendations as that is what makes a difference for me.

Have any of you gone to Chester? At least for initial assessment and first set of programme?

Beachcat, have you made any progress in choosing a practitioner?

Becarooo went to Chester and was very happy with him.

We too go to Hemispheres and have been FANTASTIC!!!! They have opened a branch in Winchester now if that helps? Still a trek, but not London.

Indigo- that's quite a claim about your ds with asd. Can you tell me more about how he has improved and what were the main treatments?

Google

The main treatments we've done with DS are:

• Auditory Integration Training (at the Sound Learning Centre)
• Retained Reflex Therapy (at the Sound Learning Centre)
• Osteopath
• Tinsley House

Both TH and SLC are totally brilliant. Not even sure which one I'd recommend to go to first - probably TH.

He has fairly mild ASD - but was really struggling at school.

ie walking out of class up to 5 times a day, hitting kids on occasion.
Threw a chair once.

Thought he was being bullied.

Spent all lunchtime trying to escape. (literally climbing the fence)
Was doing very average academically (when he should have been doing a lot better).
He was also always very anxious, and had quite a bit of OCD.
School were ringing us about once a week to complain about his behaviour.
Rigid, black & white thinking.

Now, he's doing very well at school.

Doesn't walk out of class or hit.
Got loads of friends.

Is able to resolve normal playground stuff himself.
Is doing very well academically.

Has no behaviour problems.

Is head boy school councillor. (ie he represents the school when they want one boy and one girl for something)
And is now doing well at Rugby as well.
Is calmer and happier.
Can be reasoned with :) (ie not black & white thinking anymore)

He's still a little bit anxious - but far far better than it was before. And he still has a bit of OCD - but we haven't finished treatment at TH yet.

We moved school at the same time as doing all these treatments, which has also helped enormously. I have got to say when he was asked to represent the school at some Olympic torch thing I was really overcome.

I would thoroughly, thoroughly recommend Shelley Birkett - Eyles.

She is based in Lightwater/Surrey - if you can get there. If not hemispheres (the name of her company) have people scattered all over the place.

That's really amazing progress indigo. How long would you say that took and, if you don't mind me asking, how much do you think you spent? We don't qualify for cauldwell funding.
I haven't investigated any of these therapies for ds with asd. I think I've been slacking a bit. He recently had an NHS OT assessment and he had a high number of retained reflexes. He probably has dyspraxia as well, although we didn't bother getting a diagnosis. His handwriting is dreadful (he's 7) and he has attention difficulties as well. (although not hyperactive)
Where would I start? We live in the north east but could travel.

Beachnut - we have used Mary Mountstephen and would recommend.

beachCAT

Google, You can read more about Tinsley House on this thread

I'd recommend starting with The brain food plan, which recommends diet, vitamins and some exercises to do.

If you can follow that plan for 2 months and are seeing an improvement, then I'd recommend going to Tinsley House. The therapy takes about a year, and over the whole year should cost about £1,000.

Sound Learning Centre is even more expensive. AIT was fantastic, and I really would recommend it, but it costs about £1200.

If you do TH and AIT I don't think you'll also need to do the other stuff I did :)

Thank you for the info. You must be soo pleased with your children's progress

Hello there. Thank you all for your input. Just to update and let you know that we are seeing Mary Mountstephen (thanks sphil) and are very happy. I feel this is the right route for us at the moment and will come back on here when we have made some progress. Thanks again - this is my first time on Mumsnet and I have found it so helpful - a revelation!

Sorry to barge in as well,
I am curious how everyone is getting on but thread seems to be no longer live.
I am just embarking on brushing for RR with DD 5 1/2yrs.
Oddgirl - How how is your DS doing with brushing.
I would love to hear some good news

Yes same here Popo23. I am very interested in hearing more about Retained Reflex Syndrome....there are many adults that have seriously missed the boat on this wonderful therapy.....ANY up to date news happening ?
We would love to spread the good news about this stuff.