Do u know about left side hemi syndrome?!

[samira837]

Hi dose anyone out there know anything about left side hemi syndrome my ds2 who is 2 years and 2 months has just been dx with this and epilepsy. Plz if anyone know anything or have child with the same dx let me know thx

Hello Samira,

My DS has left sided hemiplegia. Is this what you are talking about. I have never heard it called a syndrome ... it is a form of cerebral palsy where the damage/injury has been to the right side of the brain. The effect is then like a stroke on the body and people are affected mainly in their hand/arm, foot and leg - however things like balance and eyesight can also be affected.

My DS was diagnosed when he was 6 months so I am imagining that he might be more affected than your DS, if he's only just been diagnosed. It was very obvious to us with our DS because at 3 months he was not using his left hand at all and this carried on.

Let me know if there is anything else I can help you with - I don't mind you asking any questions.

There is also a website - www.hemihelp.org.uk

This will tell you LOADS about hemiplegia and there is a forum on that website for you to talk to people/ask questions.

Hi thx soo much all I know is after a lot off test on ds2 I got a letter from his consultant that sad -Problem 1: Epilepsy with focal seizures 2: left side hemi syndrome...I have asked what this is and was told its a weakness on his left side now this could be because 1: he had a stroke when he had a seizure (have hade them sins he was 2 weeks old) or 2: this is just how his brain developed.

Never was I told anything about cerebral palsy..but as u say the balance thing and hands its so ds2. He can walk and use his hands but its like he is drunk he is starting physiotherapy next month.

Can I as about u child how is he now?!

Sorry Samira - I forgot about this post - and now have to type with 1 hand, due to big sleeping baby on lap ...

DS (nearly 5) is doing so well now. We have done tonnes of different therapies - all private - I can tell you about if you want - now DS is riding a bike beautifully without stabilisers - he does find climbing and fine motor stuff difficult, but adapts things v well so he copes admirably.