Night time toilet training a 7yo boy with aspergers

[IvantaOuiOui]

Does anyone have any advice? He is a very, very deep sleeper, shouts and gets upset if we wake him to take him for a wee in the night and then is grumpy in the morning. He will wear Dry Nites but has a overnight residential trip with school in March which he is determinded to go on and doesn't want the others to see his "nappy". He is dry in the day but doesn't have any bladder control once he's asleep at all. I really don't know where to start.

Hi
My DS (HF ASD) was late being dry at night - even when we lifted him to take him to the toilet before we went to bed. Was sorted before he went on 1st residential trip in yr 5 though
My godson has similar problems (even though he does not have ASD/AS) and it was an upcoming residential trip that made my friend seek help about it. She consulted their family GP who prescribed medication - along with specific advice such as: time of last drink at night etc and he was sorted within a week! Might not work for everyone - but worth talking to GP about if you are prepared to go down the medication route. (GS was only on meds for a few weeks I think and was then weened off them - no probems since.

I used a bed wetting alarm for my daughter in combination with desmomelts (artificial hormone which controls over night urine production) and then decreased the dose over a few nights. It took about two weeks. The alarm wakes the child with a very loud sound when they start to urinate and gradually they mange to make it to the loo in time. The desmomelts meant there was less wee than normal. I had found the maximum dose of desmomelts didn't work for her alone.

I also have an 8 year old, Aspergers,wet at night only. Daytime, exteme urgency often. Very deep sleeper and will get night terrors if over tired.

We have tried the Desmotabs as recommended by GP- no success. Have been offered the alarm, but given that my chap has severe auditory issues, I dont want to go there unless absolutely necessary. We have been trying to toilet train since Sept now.
Since Dec, after attending the enuresis clinic, we have been doing charted drinks to some success.
Basically, he has 7-8 drinks per day; 3 at breakfast. No milk after 3.30pm (advised that because its a food, it takes longer to digest and increases the volume later at night). No fizzy drinks (not an issue for him). Fruit drinks,smoothies are fine.
We have had up to 5 dry nights before he relapses. Definitely, if he has his drinks earlier in the day, there is a higher likelihood of a dry night. However, if there is any change to routine e.g. staying up late, travelling away, then more likely to wet.
I am going back to the clinic next week. I found the nurse not particularly helpful- she didn't seem to realise he is incredibly bright and not to be spoken about in a trifling way.
But I try not to be concerned about it as he has been slow to reach all his milestones and I feel this will come in time

We were told to get ds to do a 'double wee' at bedtime, he has his wee then counts to 30 (seconds) then does another one, along with no drinks past 6ish he is dry most nights. I do sometimes lift him if he's had a late drink. He is dry most of the time, he sometimes has a little wee but not the bed soakers we were getting. We should also up his liquid intake during the day but it's hard because he rarely recognises when he's thirsty, but I'm working on it.

WMM, I also found the particular nurse we saw at the bedwetting clinic absolutely useless! I worked out my own method and had cracked it by the next visit and didn't need to attend. Is there a vibrating alarm that may work for your son?

Hmmm vibrating- didn't think of that. We are due back to her this week- not looking forward to it but will stick with it for the moment. I will ask.

WannabeMegMarch (great name) your son sounds very much like mine. I will try to see the doctor (almost impossible with stupid new appointment system) and also try the double wee. Trouble is he self-sabotages, we tell him no drinks after 7pm and then he goes and drinks water out of the bathroom tap, he knows it makes him wee but still does it as he hates being told what to do.

Retained reflexes especially reducing the spinal galant reflex sorted out the bedwetting for DS at 5. May be worth looking into it before medication and if the alarms fal to work. Took around 6 months of exercising the angels in the snow exercise, it's on YouTube I believe too.

blue thank you so much for that. The Spinal Galant is my son to a T. I dont like giving him medication as I know his whole life he has been slow to get 'there' but he does get it. He hates having to do any exercises that make him 'different' but if thats what he needs.....
Ivanta my little man does something similiar with drinking late at night. So now I nag him to get his 7 drinks in before 6pm. And he marks it on a chart. and he is DELIGHTED when he is dry. I dont know if this is familiar but my son wont recognise that he is cold/tired/hungry/has a headache/is tired. Until its extreme. At the same time as being hypersensitive to external stuff.