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Very pleased to announce - we have a full house!

20 replies

IndigoBell · 28/12/2011 15:06

As most of you know DS1 has a dx of Aspergers, and DD has a dx of (severe) Dyslexia, well today we managed to get DS2 a dx of DCD (Developmental Coordination Disorder)

So now we've got the full set - ASD, Dyslexia and Dyspraxia :)

I feel really good. I've been telling school for the last 3 years that DS2 has problems, and they disagreed. They thought all his problems were 'learnt' from copying DS1.

Now, I know exactly what his problems are, I can start to help him.

It is truly unbelievable how little teachers know - how badly they're let down by their teacher training course.

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EllenJaneisnotmyname · 28/12/2011 15:22

That's great, sort of, Indigo. I hope it really means some support or at the very least, understanding. Knowing you, I'm sure the school will soon be well educated on DCD/dyspraxia! Xmas Smile

CinnamonPretzel · 28/12/2011 15:27

Xmas Smile Thats great news - I bet it feels like a weights lifted.

tryingtokeepintune · 28/12/2011 15:29

Oh Indigo - I guess you were expecting it?

However, I now what you mean about feeling good about it because you can now start to help him.

No - not unbelieveable how little teachers know - I think most of us have come to expect that it would be unusual to find teachers who know much about SEN. However, you dcs are very lucky because they have you.

auntevil · 28/12/2011 15:56

Bet you can't wait to go and wave the dx in their faces with an 'i told you so' look - or are you going to be more dignified? Grin

elliejjtiny · 28/12/2011 15:59

We have a full house here as well.

imogengladheart · 28/12/2011 16:06

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IndigoBell · 28/12/2011 16:08

AuntEvil - I've paid a lot of money to be able to say 'I told you so' - Nothing dignified planned :)

Cinammon - it's a huge weight lifted. All yesterday I was really worried the OT would say he was fine. :)

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dolfrog · 28/12/2011 18:41

IndigoBell

all of these issues are genetic, now you have to find the family genetic links to find the best sources of home support for each of your DC

lisad123 · 28/12/2011 19:31

We have full house here too. Grin
Although think we need to get dh a dx nextConfused

ouryve · 28/12/2011 19:49

Full house here, too. We joke that DS1 has an awful lot of letters after his name Xmas Grin

ArthurPewty · 29/12/2011 10:21

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coff33pot · 29/12/2011 13:41

Dont know about full house but I definately live in a mad house we are curently playing with moonsand whilst wielding light sabres (wrapping paper tubes) Xmas Grin

I am really pleased for you. I remember you being anxious about your appointment in the Friday night thread about them thinking you had lost the plot :)

Now onwards and upwards so wave that dx well and proud at school xx

Ineedchristmascake · 29/12/2011 17:40

Great news indigo, Sad and Smile for you.

IndigoBell · 30/12/2011 11:17

I've really crashed now. After being on a high yesterday that I had a dx, I'm feeling really depressed now.

Not because he has DCD. That doesn't bother me at all.

But because school should have noticed! Everyone's life would have been so much better if we'd got this dx 2 years ago.

How can I keep sending my kids to school, when they couldn't organise a piss-up in a brewery. :(

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ArthurPewty · 30/12/2011 11:23

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ArthurPewty · 30/12/2011 11:23

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appropriatelytrained · 30/12/2011 12:01

Indigo - I completely understand what you are going through. I had to battle DS's old school every step of the way as they attempted to positively undermine every action that I took on his behalf.

Through diagnoses for autism, sensory processing disorder and ehlers-danlos syndrome, every no good ignoramus has made my life, and therefore my son's life, MORE difficult rather than less.

Yet, every step of the way I was proved, sadly, right. I say sadly because we end up living in a truly bizarre world where we feel, initially at least, pleased when we are told our child does indeed have the difficulties we suspected. Pleased because now everyone else in their lives who was failing them might actually do something about.

One thing I have learnt is that a diagnosis will make NO difference to those who don't want to listen and learn. They will just seek to undermine it or to cast doubt upon it as no one want to be proved wrong.

Yes, teacher training does not cover these developmental disorders but we are talking more of common sense, knowing and caring about the child in front of you and working with parents. You do not need specialist training for this. You need to care and to have access to basic information.

Ineedchristmascake · 30/12/2011 12:37

Really feel for you indigo, 3 months on from Dx and I still have days when I am completely gobsmacked that Dd3's old school were so dead set against helping her.

I don't know what to say to you, I can only sympathise[sp].

I have been advised by PP to write to the secretary of state for education, just don't know if I can be bothered.

Feel I should save my energy for Dd3.

Your Dc's are lucky to have a mum that works so hard to get the support that they need but we all know what it takes out of you.

coff33pot · 30/12/2011 16:38

Hugs Brew & chocolate to you Indigo :(

I can understand how you feel school wise it is like a constant headbanging against a wall battle isnt it.

Although annoying and VERY heatbrakingly frustrating as it is, it will do you no good to dwell on what could have been 2 years ago.....

You are a great Mum who has done remarkable things with therapies for your children with shown improvement. :)

Now this is a new start for your DS and with that dx brings new understanding. You go right in school with that dx and tell them what you want to see happen. xx

creatovator · 30/12/2011 17:42

Indigo Congrats on the dx. Understand how you feel about the school. We eventually decided to move DS dx AS, into a different school for kids with his dx. It has been so much better since we did. They help with the battling for services and DS has come on leaps and bounds. I still have to battle and generally go straight to one of my local councillors which is the only way we've got results.

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