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Original poster

Is this normal?!

10 replies

samira837 · 27/12/2011 11:44

Hi some info my ds was diagnosed with asd 4 months ago
At the appt I asked where on the spectrum he was and I
They sad that they didn't know?!! As he is so young?! Is this normal

He has no speach but 1 month ago he started to say some words that I had
No idea that he could say!! He is also more social saying hi and bye when ppl come and lives ect. Have I been babying him to much and not letting him become a big boy?!

OP posts:
Chundle · 27/12/2011 13:44

How old is your ds are you in UK?

Original poster
samira837 · 27/12/2011 14:01

Hi chundle yes we are in the uk South Yorkshire my ds is 3 years and 9 months

OP posts:
EllenJaneisnotmyname · 27/12/2011 14:15

Samira, he's probably quite young for them to test his understanding, especially if he has delayed speech. If he has average to above average IQ they'll eventually DX him as HF, but they have to be able to test it. If he's in a child development and assessment centre, they'll get the chance to observe him over time, otherwise you may have to wait until he's a bit older.

Others on here may know of tests for a young, speech delayed child. An EP may be your next port of call.

Ineedchristmascake · 27/12/2011 14:57

Samira... don't beat yourself up about babying your DS, it is natural to protect your child especially when they have special needs.

It is good that he says Hi and Bye because it shows he is aware that people are coming and going around him.

Try not to worry about where abouts on the spectrum he is and just encourage him. When he has successes, celebrate and if he takes a step back so what.

Does he go to a pre school/nursery of any kind?

Original poster
samira837 · 27/12/2011 14:59

He is not in a child developmental and assessment centre he just gose 2 nursery and has a speach and language therapist that helps him with pic exchange thingy and that is it not much have changed (from the doctors) sins getting the dx.

Before getting the dx we went 2 a combine clinic for 8 weeks so that they could observe him also at the last appt with the psychologist she did some test with jigsaw and sad that he did as well as a child his age!!
I am sorry for going on but its. Just that everyone I know with kids who is on the asd have been told where the child is and 1 is younger then my ds!

OP posts:
EllenJaneisnotmyname · 27/12/2011 16:04

Hi Samira. My ds was 3.6 when he was DX as ASD but he didn't get a HF DX for another year. If yoor DS is doing well at things that don't require speech, like jigsaws, that is really encouraging. Smile

Ineedchristmascake · 27/12/2011 18:06

They may be waiting to see what happens with his language samira.
If he starts talking more it will become more obvious where he sits on the spectrum.

Its great that he is using pecs because he will be able to communicate his needs to youSmile.

I think it is common for people to just be left to get on with it after DX.

My Dd3 who is 9 and has ASD has been discharged by everyone who has ever seen her except the physio's.

Good luckSmile.

chocjunkie · 27/12/2011 19:38

samira, yes, I guess it is nomal. my DD (3.10) was diagnosed with asd last month. she also has very little speech. we also asked where she is on the spectrum and got the same answer - too early to tell. our paed also said that the development of children with asd is far more indivial than the development of NT children (who develop all in a more same(ish) predictable way) and it is not really possible to predict where a child with Asd at 4 will be in a couple of years time. only time will tell.

mumslife · 27/12/2011 20:18

This reply has been deleted

Message withdrawn at poster's request.

Original poster
samira837 · 28/12/2011 08:14

Thax everyone for the replays will stop stressing about it now!!
Its just a matter off waiting and see

XXX

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