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I have an SN child

19 replies

GoingForGoalWeight · 18/12/2011 00:13

feeling dow, nobody to talk to ove Christmas holidays, feeling lonely. The repetative routines, the pad changing, the constant feeking etc jusy wears me out.

I feel i need a bit of a whinge is all.

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GoingForGoalWeight · 18/12/2011 00:14

*feeding just

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GoingForGoalWeight · 18/12/2011 00:18

He is a lovely boy, just i get a bit fed up sometimes, he doesn't have speech and i really miss what he has never had, if you understand :(

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IndigoBell · 18/12/2011 00:22

I'm off to bed - but wanted to let you know I'd read this.

Do you have a DH or any other adult family to talk to?

Everything does get you down. It sucks. Really sucks.

Especially at this time of year.

But you'll get through this. You will.

Hope someone else is up to talk to you.

GoingForGoalWeight · 18/12/2011 00:26

Hi Indigo :)

Thanks for replying :)

I immediately felt better just typing it out, no husband or family :)

I'll be OK just need to make some carer friends who understand, hipefully i found a place here...

I might whinge, rant avbout being a lonely carer here, better than letting it fester :)

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IndigoBell · 18/12/2011 00:32

You'll def find some friends here. Whatever you're going through, you'll find someone else who's in the same position.

This is a great board. Has helped me many, many times.

Are you up at this time of night? Or do you live in some other time zone?

Do you only have the one child? What's his diagnosis?

GoingForGoalWeight · 18/12/2011 00:39

I live in UK - usually in bed now, but plucked up courage to start a thread took a bit of time, although i'm on other threads.
Bit scared of being judged i guess as this year i've been having some counselling and it's a hard journey throws up all kinds of emotions. I have one autistic child :)

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coff33pot · 18/12/2011 02:30

No one judges here :)
Rant all you like it helps writing things down :)
I would have replied earlier but been helping dd who is poorly right now. Glad you feel better. We all know how hard things are sometimes.

Off to bed myself now. Hope you get a good nights sleep :)

IndigoBell · 18/12/2011 08:15

GoingForGoal - maybe you'd like to join this thread

GoingForGoalWeight · 18/12/2011 13:44

OMG I could cry, the thread is perfect for me!Thank you Indigo :) x

But i worry i will be judged as i'm finding life tough at the moment, i'm having therapy and thats why its magnified times a million sometimes :(

Hi coffpot, thank you for replying, very thoughtful :)

How is DD? :)

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IndigoBell · 18/12/2011 13:59

GFG - no one on the SN boards judge. We've all been told we're crap parents and the child is naughty and it's all our fault etc etc.

Most of us don't have many friends in RL - for the same reasons you do.

Hang around here and over time you'll build proper friendships.

GoingForGoalWeight · 18/12/2011 14:27

I guess i need a whinge thread, my child is not naughty he is really pleasent all the time but as a mother i have felt 'on trial' by professionals. My son is blind too.
I might seem ungrateful we get respite but its the sheer isolation i find tough grrrrrrrrrrrr

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GoingForGoalWeight · 18/12/2011 14:35

No help in the home. nobody to moan to - which is hard for me to write that word as moaner is something i'm not but not getting it out is making me crazy.

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GoingForGoalWeight · 18/12/2011 14:37

Son is in pads, cannot do ant=ything and the small things get to me as been 13 years of same thuing over and over alone at home.

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GoingForGoalWeight · 18/12/2011 14:47

Like now the house is a tip, Son was off school last week with sickness bug so not much time to clean, tidy, now he is sitting next to me cannot move. I have to get this house cleaned even though no visitors, there are jobs i havent done since June :(

I need to go to shop which means chsnging his clothes again grrr FFS

I do notknow why ifeel so bad aside from this fecking therapy which i must stick to as in a way i'm better i know 100% :)

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GoingForGoalWeight · 18/12/2011 14:48
  • i know i am

Just njeed non judgy place to vent.

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Chundle · 18/12/2011 16:18

Hi going you've definatley come to the right place not to be judged I've found these boards ever so helpful. X

Ineedchristmascake · 18/12/2011 17:40

Vent away going,

Welcome to the board, this is the place lots of us come when things are getting on top of us.

We all know what it is like to have a child with SN and how judgy other people can be.

FWIW my house is a tip too but luckily I don't care todayXmas Grin.

It will still be a tip tomorrow and then maybe I will tidy it ... a bitXmas Grin.

GoingForGoalWeight · 18/12/2011 19:26

Thank you Chundle and Ineedchristmascake - yum :)

Went for a night time drive, just had to get out, Son was loving the tunes on the radio. Feeling lonely seeing couples, families, friends together gets nme down at anytime of year but especially in the summer. I dont want people in my house just people to go out and meet, go for meal at weekends etc. I deserve it why can't i have simple things so many otghers even horrid people seem to get so easily.

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GoingForGoalWeight · 18/12/2011 19:32

The ice is starting to form on the roads - gosh snow is awful with an SN child, my car is automatic and refuses to go.

Wonder how carers get on with their children/adults in wheelchairs in the snow ,,,bad enough for the elderly.

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