Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Do I need to chill or push for more help?

7 replies

pinkyp · 13/12/2011 00:58

My ds is 4 and has asd traits, both myself, dh & school have noticed things. School have put him on a action plan to help him and are kinda "seeing how it goes". Hv has been round and observed him at home and from what she has seen isn't concerned.
He has outgrown alot of things, he use to be scared of hand dryers, not socialise with others, never give eye contact etc. Now he does (probably not as much as he should but loads better).

But! Now I have ds2 (1 years) I'm even more worried about ds2 as I am noticing how different ds1 was as a baby. For example Ds2 has got a sit on car and plays with it, sits on it/ pushes it etc. When ds1 was little he's lay down and spin the wheels and watch them over and over again. Ds2 likes to open cupboards and grab things out, ds1 use to open and close cuboards over and over watching them etc etc.

The things I'm currently worried about with ds1 are:
He can go weeks with no accidents and then will go weeks with having accidents (pooing himself) and always says "I didn't make it to toilet in time" - 9 times out of 10 he never try's. He also has other toilet issues, refused to go, won't poo when you can see him desperately needing to go. Sometimes he sits in it too until we smell /notice it.

He also likes to lick his hands and chin, but mainly his hands. He caused his lips to bleed with all the licking.

He seems behind at school compared to others, can't recognise his own name, has no interest in reading or writing but loves colouring and will sit doing it all night.

Sometimes he talks gibberish and I have to keep telling him to talk properly, he ends up getting stressed out and will shout.

He often shows something's wrong (he might suddenly lay down or huff and puff) and then if i ask him he'll shout "nothing".

He is funny with foods, won't eat brown food, definitely not things that need browning eg roast potatoes. Past few days he won't swallow his food just chews it.

He always tells me he needs toilet, rather than just going. He'll walk past toilet to tell me he's busting for a wee.

He seems to be morngy and will cry / scream easily, eg if ds2 touches one of his toys.

I don't know, am u just being paranoid or not? What would I do? School won't admit there too concerned, hv see's nothing wrong. Is it just me?

OP posts:
IndigoBell · 13/12/2011 06:46

Sounds like lots of problems there.

I defthink you should go to your GP and ask for a referral to a child development paed.

Take this list of issues with you.

HV and school not noticing means nothing. They're not trained in ASD, and probably know less about it than you do.

pinkyp · 13/12/2011 07:41

Thank u, I'm sure hv thinks im exaggerating and school don't seem to want to do anything.

OP posts:
IndigoBell · 13/12/2011 07:57

I'm afraid if you read this board you'll find it very very common for school to not notice anything, and for HVs to give bad advice :(

one thing I've learnt the hard way is not to trust professionals. :( I now wait for them to demonstrate they know what they're talking about

IsabelOSullivan · 13/12/2011 11:09

push for more help. it's unlikely to do any harm and could benefit him enormously.

pinkyp · 13/12/2011 12:26

will make a gp appointment after christmas. I watch him play with others and i feel sorry for him, he seems happy enough but is always on his own or when he's with someone he doesnt interact like other children do together if that makes sense.

OP posts:
Ineedchristmascake · 13/12/2011 17:15

The thing ispinyp, no one will diagnose your little boy unless they think he needs a diagnosis, if that makes sense.

Many people on here have to fight tooth and nail to get a diagnosis so you needn't worry that they are going to be thrusting one upon your son.

He will probably see a number of proffs who will be looking at different things before they decide what to do for him.

Good luckXmas Smile.

pinkyp · 13/12/2011 18:34

Thank you. Feel so Sad for him right now.

OP posts:
New posts on this thread. Refresh page