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Rollercoaster day today

7 replies

Triggles · 07/12/2011 23:35

Good grief, talk about going up and down today!!

DS2 has been ill (suspect croup, asthma playing up, fever) over last 2 days of school so has been home.

IEP review today at school. Some good things, some bad. Teacher agreed with me that some of the stuff the SALT is saying he is testing well, he is not implementing at all when talking in general. Teacher also agreed that he is not forming relationships - although he is happy to play with the children, and is particularly fond of a few, he isn't forming a "friendship" with them. He will play with whatever child is available to play with, much like a toy - so-and-so is there, so play with them, if that makes sense. There's no actual sharing and bonding involved. No "relationship" of shared activities and experiences and such.

They wanted to implement a level chart of some sort, indicating what level he is at emotionally, so that he recognises when he is getting too upset and needs to calm down. Hmm Since he doesn't really RECOGNISE the emotions well, other than basic happy, sad, and angry (and sometimes even that is questionable), he certainly isn't going to be able to tell them or notice when he is feeling too upset and needs to calm down! And they mentioned taking pictures of him and using a picture of him happy for the chart and a picture of him upset... what??!!! I said "I know you're not suggesting that while he is distressed you're going to stand there and snap a photo of him, and then show it to him later to see if he is distressed." Angry Then they made complete about face, saying oh no no that's not what they meant. sigh... I was very clear I did not endorse that. I suggested basic smiley faces to show basic feelings and get him to use them to start recognising feelings first, with a view to eventually getting him to recognise them in himself in the future.

Generally alright with the targets, and they at least listen to my opinion and alter things accordingly, which is good. But still a few moments where I was like Confused seriously? You consider THIS an issue?? and a few odd discussions.

Now, tonight BOTH boys (DS2 & DS3) are doing the loud seal-like barking cough and having a lot of difficulty with it waking them up, both have low fever. So I'm likely to be up all night between the two of them, and DS2 will probably be home AGAIN from school tomorrow. He's supposed to go to a swimming party on Saturday, which I RSVPd with a yes this afternoon as he seemed to be improving, now I'm not so sure. Confused I'll probably have to take both of them to the GP tomorrow to get checked. I know that steroids (such as prednisolone) are pretty common to jump start them with croup, but I truly hate prenisolone (DD had it a couple times as a child, due to asthma problems until she had a truly awful reaction to it), so hopefully if they end up with that it will be a very short course or single dose. We won't even go into DH being grouchy because I asked him to go downstairs to get the Nurofen for DS3, as he needed it. I'm going to be up literally all night, and he's grouchy because he has to get up for 5 minutes to go get a bottle of medicine for the boys? Really?? Angry

And DH went to his counselling assessment today. They can do his counselling, at reasonable price we can afford. But it won't start until FEBRUARY!!! Aaaaarrrggghhhh!!! I've been just hanging onto my insanity thinking it started this week, but no, it's just an assessment!!!! grrrrrrrrr

Money's tight, I'm exhausted, I still have to buy a birthday present for Saturday's birthday party (just in case), as well as birthday present for grandson as that's this weekend too. And I don't even know if we'll be able to go to EITHER party as both boys are ill!!!! We agreed to watch grandson Saturday evening for a few hours, but if the boys are still ill, it's going to be really stressful.

I could use a glass of wine, but cannot drink anything in case I need to take one of the boys in to A&E if they get really bad during the night. And hopefully they'll be fine as if I take one, I'll have to take both, as DH is useless at listening to them at night (ok, partly because his AD is a sedative that he takes in the evening, but partly because even if he DOES here them fuss, he ignores it awhile hoping they'll stop, which aggravates me to no end!!)

Yup... some good, but all in all, not the best day. Someone PLEASE drink a glass of wine for me, as I can't have any right now! Grin

OP posts:
Triggles · 08/12/2011 07:55

Oh, and school personnel clearly agree that paed told them at their meeting that DS2 has ADHD, DCD, and AS. While her letter to us doesn't mention AS at all, and she said she was uncertain about autism at this point. They stressed that paed was very clear that AS was a factor in her meeting with them. Am I missing something?

OP posts:
Triggles · 08/12/2011 08:01

Isn't AS usually used for Asperger's? I'm curious as usually I've seen that Asperger's is differentiated because they haven't had a language delay or cognitive delay... and DS2 has both. Confused Or is she using AS as indicating "autistic spectrum"...

this is what happens when I don't get enough sleep... my brain gets muddled... sigh

OP posts:
coff33pot · 08/12/2011 15:24

Hope your boys pick up soon! They have been through the poorly mill havent they poor things.

AS usually abbreviates Aspergers but I have noticed some also use it to me Autistic Spectrum?

EllenJaneisnotmyname · 08/12/2011 17:01

Hi Triggles. I haven't heard of AS used for Autistic Spectrum, the most recent PC term is ASC, with the C for Condition as it's less negative than Disorder.

I have to say the emotional barometer thing is often used to try to help DC understand their feelings. It's good that they are looking into it, but they obviously need to keep it at a level your DS can access. Taking photos of him during a meltdown sounds a bit Hmm .

Hope you are all better soon and are able to enjoy some parties.

I'll drink some mulled Wine for you with pleasure!

Triggles · 08/12/2011 17:05

DS2 is better today, thank goodness. He went to RDA riding this morning, and they had arranged for "Father Christmas" to come and ride with him!! So he got to ride horses with Father Christmas (who had his riding helmet under his hat! Grin), play some games, and then Father Christmas gave him a present (wrapped, so he excitedly opened it and was thrilled to find a sticker book).

It really made his day, after being ill for a few days. The helpers were all chuckling over how happy and excited he was over it all. What a lovely thing for them to do!!

OP posts:
Triggles · 08/12/2011 17:07

Yes, ref the AS, I've always heard it referred to for Aspergers, however, the paed has never even mentioned that, only ever briefly touched on "the spectrum" and mulled over HFA. Ah, well. It won't matter soon anyway will it, as aren't they putting it all under the ASD umbrella soon anyway?

OP posts:
Ineedchristmascake · 08/12/2011 18:39

I have definitly heard people using AS for autistic spectrum recently triggles. I am not sure if they just are confused thoughHmm. Mind you who wouldn't be with all the terminology and the fact that its all about to be made into one thing.

Glad your Ds had fun today it sounds like the helpers really went the extra mile. What lovely peopleXmas Smile.

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