I don't think I can bear this.

[NoHaudinMaWheest]

I have a 15 old DS who is inteligent, witty, enjoys school, is very loving and even quite good-looking. OK he has AS and that makes him quirky and sometimes infuriating, but that's who he is and he is dyslexic and that makes it hard for him to get his thoughts down on paper but we are working on stategies for that. He is working to GCSE A standard in maths and science, he is organising a Christmas shop at school lunchtimes to raise funds for his unit, he is doing a talk on the solar system at Space Club, he is full of plans for Christmas BUT his OCD is really flaring up again. Last Wednesday he was back to saying that it wasn't worth living if he was like this. He took 5 hours to get ready for bed last night and barely got his school bus this morning. Professionals are talking about another admission but he only came out of hospital after a 8months stay in Feb. Medication only takes the edge of things, because of his AS he has diffculty making full use of CBT. I don't know where we go from here. He has been struggling with OCD since he was 8 and I am terrified for his future. He could do so much but OCD is ruining his life. Sorry I know noone can do or say anything but I had to express the despair somewhere.

So sorry that you (and your DS) are having such a rough time right now. I don't really have any words of advice, but didn't want to read and run. I hope things get better.

So sorry to hear this NoHaudin- I have an 11yr old ds with AS but thankfully no OCD. I have no advice I'm afraid but am sending you big hugs.

:(

I don't know what to say, I had OCD in my teens as well, but medication fortunately has made a massive difference, am sorry that its not doing much for your DS and they are talking about admissions, it must be so distressing to see him suffering. from a practical point of view, is there anywhere more specialised he could be referred on to, I know in England the Maudsley in London is meant to be best for OCD/anxiety disorders.

tocha he was in the Maudsley and did improve a lot. ( he was barely functioning when he went in). I just can't bear the idea that he might go back to that state again and don't really want to see him back in hospital when he is actually doing really well at school and managing at home so long as it doesnt involve washing dressing or using the toilet. Not to mention the strain of having him in hospital in London when we live in SW England.

How sad, I am sorry I have no advice but didn't want to read and run.

I have a 9 yr old Dd with ASD who suffers from anxiety at times but so far nothing really bad.

I hope you can get some help for your DS he sounds lovely from your post.

sorry, that was no help me suggesting the Maudsley then, I assumed you were in Scotland from the user name, oops. I can completely understand why you wouldnt want another admission, as it's so disruptive to all your lives and your DS's education I imagine.Hope they can suggest something that supports him more at home.

:( Sending you and DS big HUGS xxxx

Is it possible he may have a bit of release when the holidays start? As then he is at home and the pressure of rushing for school wont be there for a couple weeks at least bless him x

Thanks for the kind messages all. Sorry I confused you tocha. I am Scots but living in England now. I spoke to DS's psychologist yesterday. She will contact Maudsley team today and new local psychiatrist who only started this week and see what she can come up with at regular appointment on Wed. DS could hardly keep his eyes open this morning but was determined to go to school and I know he will be fine there. It is such a supportive school -they look after him when he needs it and let him get on in standard maintream when he doesn't. I feel for those of you battling wikth unhelpful schoools (I have beeen there) and a good one makes such and enormous difference even at the worst of times.

I have a 14 ds in the Alpha hospital in Woking at the moment with AS and mental health issues so you have my sympathy and support