My DS is just 6 years old in yr 1 in MS school, he has 22q11 deletion syndrome which has been diagnoised for 3 years now, he is fully statemented (1 to 1 TA everyday). Since the start of this school year his behaviour has gradually become worse. We had teething problems in reception, nothing too major, he couldnt stand still in his class line and after 6 months of me standing in the line with him, he nearly got it and then the school changed the routine and no longer lined up before class...anyway! assembley had always been a challenge for him too....it still is today, he cannot sit still for long and would call out at inappropriate times.
My Son at the moment has no passion for school, he asks me every morning without fail if he has to go to school today and reacts negative when he has to go, i know this can be normal for most children but its been everyday for about 6-8 weeks now. I always try to think why he dislikes school. When he started yr 1 i did feel the school had not really took into consideration his needs. 22q11 children do not like change in the routine, Last yr in reception he had 1 teacher and 2 TA ( 1 TA working 3.5 days- other TA working 1.5 days) now this year he has 2 teachers job sharing and 2 TA's job sharing all doing 2.5 days each. 4 teachers in a week?? When i showed my concerns about how i thought my son might find this unsettling i was told it is quite normal for SN children to have job sharing TA's.
I have had meetings to discuss my sons recent behaviour, he has been sent to the headmistress on one occasion which i did not feel happy about, he is only 6 years old, SN, he is not a brat of a child, he is very over sociable but lovable! I spoke to his Ta about how to handle this behaviour as i dont want this to get out of hand! she says she is not sure if his behaviour is to do with his syndrome or if it is his personality, this leaves me feeling like the school does not understand my child. Im fully aware that the syndrome is not well recognised but where can we go from here?
I had a conversation with the head about all my worries last week, it was decided to have a meeting on tuesday to discuss a new behaviour programme with all TA's and teachers, when i tried to speak to a TA on friday after school to see how the day went with my son, she couldnt get away from me fast enough, she could not speak to me, she said she will speak to me on tuesday at the meeting, this was very off, i think the head has spoke to them and told them to watch what they say to me,
I am very upset about all this, there are other incidents that have gone on that have made me unhappy, i feel the school is now unapproachable for me and im thinking of just moving my son to a new school and hopefully he will be more happy in a different environment.
thanks for taking the time to read all this, your comments and opinions are appreciated.