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school treating as autistic with no dx yet

36 replies

2littlledarlings · 24/11/2011 12:11

hi i have not posted on here before just read of others experiences.
im posting today as im so frustrated ds1 has always been harder work than your average boy was a bad sleeper from day 1 and has never had attention or been able to sit still and generally "naughty"
Typically before i had him i used to think children like him were poss bad parented and i also thought adhd and like disorders were over dx i now feel so bad as i have proof that you can treat 2 kids the same and my other one has no issues at all.
i approached school in jul before he started in sep and they were positive and treated me like i was over worrying,putting in place for him to start 1 hour building up,i picked him up first day and the school had struggled!
on his 4th day they asked for ed phys to be bought in and from then they are treating him diff as autistic,i know there are issues but adhd he ticks every box but very few for autism. the school are letting him have his own area and his 121 is great but school are advising her on how to treat him.
worst is that we approched hv,gp, all unhelpful then eventually had pead refereal and child pysh all involved before school was even started and now its like no-one cares what i say.sorry its long lo i just want to know if anyone else had sim experiences with school?

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2littlledarlings · 24/11/2011 13:35

justabt- yes i was a big thing to say and i was fuming when i got home esp as the sch mentioned is for phys dis kids and she backtracked in the meeting when challenged in front of head, she said this to me in a chance meeting in the coridoor and also mentioned that "121's are just glorified babysitters what are they going to do for £8k a year"
I thought this was unprofessional esp as SIL is TA and BF and all the TA's in sch are great, more so than some teachers.

fango-glad you say that cos we feel one is okay but two as pead mentioned he can have sends him HYPER!

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2littlledarlings · 24/11/2011 13:39

fango-do you know of any1 that has used daytime meds to calming effect?
im dreading being asked in a way but feel from what i have been told at clinic/heard it may be the nxt step?

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fanjoforthemammaries7850 · 24/11/2011 13:39

only one at age 5, they didn't have much success

justaboutstillhere · 24/11/2011 13:41

This reply has been deleted

Message withdrawn at poster's request.

fanjoforthemammaries7850 · 24/11/2011 13:45

By the way special school has been fantastic for my DD with its small class sizes so don't rule it out totally. (and they are teaching her to write too)

2littlledarlings · 24/11/2011 13:46

thanks thats what i feel i just feel he is dif from other kids but not a lot diff ,at the end of the day if i had my head in sand i would not have not pushed for pead/child phys, and school are treating me like heads in sand i feel!

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2littlledarlings · 24/11/2011 13:52

im open to special sch its at the moment i feel that untill the energy that is constantly there in him and short attention span is addressed then it does not matter where he is, its still gonna be difficult at home he seems to ask for maybe a dvd on or toy out and 2 mins literally later hes off doing something else

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2littlledarlings · 24/11/2011 14:01

coff33pot- you sound like your ds traits/symtoms in commuincation are sim to what ds has, have you had a dx at all?

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Triggles · 24/11/2011 16:50

DS2 is 5yo, in yr1, and has a dx of ADHD/DCD, hypermobility and still being assessed regarding ASD, sensory problems, speech and language delay. He can often take hyper to a whole new level. Grin His school is doing some of the things you are mentioning with varying success. Most of it is helping, but it often takes awhile for the results to show. The thing is, his school is not looking at his dx at all. They go according to his needs. We discuss what difficulties he appears to be having during IEP reviews, and then discuss ways that we (both school and at home) can support/help him in those particular areas. Rarely does the dx even get mentioned, as it's kind of irrelevant IYSWIM.

If the senco is calling a meeting with paed and other people working with your DS, it sounds like she's putting together a multi-agency meeting, which is actually a good thing. Make sure you attend! And if, in the meantime, you are not comfortable with some of the things they are doing, arrange a meeting with the senco and ASK her specifically about those things you are uncomfortable with. She should be able to advise you the reasoning behind their actions, and if there is something you feel may work better, she should help you get it implemented.

It's important to remember though, that your DS's behaviour at school is possibly very different to his behaviour at home. At school, there are all the other children, other distractions, noises, changing schedules, all sorts of stimulating sensory stuff that is so disruptive and distracting. DS2 has a separate area in the classroom, and it's used fairly frequently by DS2 with his TA, as he needs little built in "breaks" during the day to give him time to calm down regularly throughout the day, rather as a preventative measure. It keeps him grounded, if that makes sense.

Sorry, bit of a ramble there, but I wouldn't let yourself get too hung up on the diagnosis. School needs to support his particular needs, regardless of what the diagnosis is. If you think they are not, then speak to them about it, calmly, rationally, and be prepared to offer suggestions as well. But also keep in mind that if they have a good reason behind a particular support that is lined up, sometimes it's good to give it a chance and see if it works. If it doesn't, it just get chalked up to "nope, didn't work" and something else can be tried.

coff33pot · 24/11/2011 19:33

2little Not got a final dx yet (long story), but have recently completed a Youth in Mind database dawba assessment and matched against the DSM-IV it is saying ASD/ADHD combined plus Tourettes/motor and vocal, and other bits. Second oppinion has been granted just decision making on where and who is going to do it.

coff33pot · 24/11/2011 19:34

Plus SPD and looking like APD to go with it lol

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