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school says my ds does not need a statement?

38 replies

crazygal · 23/11/2011 21:03

hello everyone
ive been on quite afew times before and hoping someone can give me some advice?
my ds is 7 and in yr 2.
over the last 2 and a half years of school the school have called us in several times,saying ds id troublesome,challenging,disruptive,excessive talker etc,
(he got diagnosed with mild to moderate ADHD)

we had our parents eve,and in there they say hes doing very well,but,hes gone from above average,to average/below average.
she said he does disrupt the class,and that sometimes they have to call in a 1-1 for him,around 2-4 times aweek,for around an hr -a whole afternoon.
and that sometimes they have to take him out of the class altogether.

we then asked her,does he need his own 1-1?
she said,dont go there,you wont get any,and beside,if he needs 1-1 we can call in someone from another class,plus,hes not that bad!

so what do you think?
is this something we should be going for?
do i beleive her when she says hes not that bad?even tho they love to tell me when hes done wrong!
i know he acts the class clown,and is a different child when we turn up to those school gates.
we also have to choose a middle school before jan,
so he will be moving,
what do we do?
thank you x

OP posts:
crazygal · 25/11/2011 20:30

yes,ive already started doing that,i took a video of him the other eve,he was in a complete rage and he hit me several times,then this eve again,because i didnt answer his question the way he wanted it answered,he lost it!!! we were in town and he flew at me calling me awful names in front of everyone!
there was a cafe next to us with chairs out side it and he threw them,i was so embarressed...didnt video that tho ,x

OP posts:
Triggles · 28/11/2011 11:16

Crazygal - what point are you at right now? I see from another thread that your son has an appointment today? Have you requested the SA yet?

Not trying to bombard you with questions, just curious how it's going.

My DS2 is 5yo and dx'd with ADHD/DCD, as well as still being assessed for numerous other issues. Thankfully, our school has been very helpful. It sounds like yours isn't, so I think your best option is to go around them and look at getting the statement yourself. There are tons of people on here who have done so. Don't let the school play down his difficulties - chair throwing and some of the behaviours you've described are not mild behaviour problems! DS2 is full-on ADHD and has a statement with FT 1:1, so I have some idea where you're coming from.

Best of luck at your appointment today.

crazygal · 28/11/2011 11:37

triggles thank you
as far as where i am right now,my ds has just had appointments with the pead and a few weeks ago go dx with mild adhd,but now im wondering if there is more going on with him!
i havent requested a SA as yet,im hoping to get the ball rolling on everything this week.
i just had a gp appointment today,i showed him some video clips from my fone of ds having a really bad temper,dr believed it was more behaviour problem than aspergers,as thats what he seems to be showing signs of,
he referred me to a family support group,which im not over happy with,
ive been with this group before and they were a great help,but i think this time i need more,like AS.
i asked to be referred to camhs,but he wasnt keen to do that,he said to try the family group 1st.
im new to all this so really dont know what im doing or who i should be seein,but im getting great hints,help and advice off SN threads and the primary one,x

OP posts:
Triggles · 28/11/2011 12:42

I'm surprised they didn't give you the referral to CAMHS. You could be trying the family support group while you're waiting to see CAMHS. I would ring your paed today and say that you are concerned there is more going on than just the ADHD, due to his rages and behaviour and ask the paed to refer you to CAMHS. Since the paed has seen your DS recently, they may be able to put the referral through without seeing him again, after discussing it with you on the phone.

So many other things can be co-morbid with ADHD, which obviously the paed is aware of, whereas your GP may not. A few of the GPs in our local practice are woefully ill educated when it comes to LDs. Hmm Interesting that your GP says it's a "behaviour problem." Is he implying (or did he outright say) that it was a parenting issue? My DS2 has "behaviour problems" but they are generally a direct result of his ADHD and other SNs (sensory, language, etc). So saying he has a "behaviour problem" isn't really addressing the concern that there may be underlying REASONS for the problem. Hmm

But make sure in the meantime that you document each and every blow-up or meltdown that he has, so when you do get in to finally see CAMHS, you can show them the frequency and factors leading up to it. It also might help you see a connection or pattern with it.

crazygal · 28/11/2011 13:01

ive been trying to ring the pead for the last two weeks about his dx,and what to do next,cant get threw,i leave messages but they dont ring back!
ill keep trying the pead as like you say,she has seen him!
the dr came straight out with it,he said it looks like a behaviour problem,and in the clip i showed him i thought i dealt with ds quite well considering.
i agree,i think afew of them are ill educated with these issues....
i have just rang the family partnership group and im awaiting there call back,im sure they will do abit for me,
ill let you know on that soon hopefully x

OP posts:
Triggles · 28/11/2011 14:06

I'd say if after two weeks you haven't been able to reach the paed, you might want to consider putting together a letter requesting a CAMHS referral and send it to your paed ASAP. They're less likely to ignore something in writing.

Triggles · 28/11/2011 14:06

sorry, I mean if already after two weeks... not two MORE weeks...

fraggle500 · 28/11/2011 20:11

This reply has been deleted

Message withdrawn at poster's request.

fraggle500 · 28/11/2011 20:12

Sorry not sure why this tagged onto your post, will have it moved.

crazygal · 28/11/2011 21:03

lol thats ok,mite as well leave it there,you mite have some help here from it to,
hope you get some help for him!!
cant beieve you were refused a statement?how did you go about it?the statement that is?did school help?or did you do it yourself?

OP posts:
crazygal · 29/11/2011 14:27

omg.....
well i think im maybe getting somewhere now!
i seen ds ht this morning and asked if i could have a word,we went to her office,
(ht is also senco)
i told her about ds behaviour/aggression at home and showed her two video clips from my fone,i asked her if she could confirm if ds was behaving this way at school,she said last year,yes and it was even worse than that,this year,not so much,this year is better,she said he has a teacher who is very calm and does not rise to his demands and neither do the children (ds was placed in a different class this yr as he had isolated himself from his group last yr)
i told ht that i seen the dr yesterday and that he wouldnt give me a referral to camhs,
ht said well i think ds is going to struggle in middle school as hes already starting to struggle in yr2,she then said im not sure if he has adhd,she said i think he has aspects of it,but im abit concerned theres more going on!
i questioned her on this and she said i cant answer that,its not my place,i asked her if she taught he was aspergers?she said noooooo,but i cand see what you mean when you say that,
i then begged her to tell me what she tought was going on with him,she said im not an expert and i suggest you get him assesed again because im seeing ODD,but she couldnt say for sure...
she told me to go back to my dr.and ask for a referral for a second opinion
she said the pead should see him again and maybe send the ed psych to the school were he will be assessed,and hopefully with everyones imput ds should get some help.
i asked,you mean help as in,a statement?she said yes.....wow!!!
she said he dosent need it for this school as we are giving him some,but he will need help for middle,

im feeling very happy about all of this
would any of you suggest this route aswell?
as the dr. wouldnt give me a referral?

OP posts:
Triggles · 29/11/2011 17:15

yes, that's why I mentioned the paed again, as obviously your GP isn't willing to listen.

AgnesDiPesto · 29/11/2011 21:18

Yes and ask the paed to write to the school as to what they see
Def apply for the statement as you will have the evidence by the time you need it and HT supportive - but apply yourself
Yes you can get 1:1 without a statement
Ask the HT how much 1:1 do schools have to put in before a statement is issued.
Ask if they can put in 1:1 now and if they say no ask why
Also ask if there is a behaviour support team eg outreach they could call in whilst you are getting a diagnosis.

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