This morning out of the blue I received a letter explaining that as the parent of a child with special needs I may not realise the services which were available to us. I was told that a group of health professionals meet once a month to discuss the children under the CDC and that to have input to this meeting I should complete the enclosed questionnaire, this is the 'pre school liaison group', I'm irked that my child will be discussed when I can't be there in person and not sure wether to make the questionnaire nicey nicey or a vent for the services we think would benefit DD. The questions include being asked wether we have been told anything about our childs condition, are they referring to HIE (where we tell the professionals things they don't know) or CP which as yet the paed has not acknowledged.
I can only assume that DD being discussed is a knock on effect of her being referred to the CDC three months ago, we have our next paed review next wednesday and we have an OT assessment mid December (referred 4 months ago). Physio saw us a month ago and dropped the CP bombshell but as yet we have had no info as to when we will next see physio or indeed any proactive therapy. We are going to Brainwave in February to seek more therapy, not sure wether to put that on the question sheet either.