Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Receptive communication

30 replies

dev9aug · 08/11/2011 11:16

Had a look at the archives and found some usefull info on communication, but was looking for personal experiences here to guide me.

Ds1 has a working diagnosis for asd. He is non verbal. Very little eye contact, apart from when I am singing to him, then He will look at my mouth and touch my mouth for me to finish singing if I stop midway. Its normally the same stuff so I guess he understands the start and finish. He does babble, but not directed at anyone in particular. The sounds he makes are mostly dada, but occassionally will come out with mama,nana etc...

He doesn't undertand any instructions but has situational awareness, he can imitate, but slow to pick up. Bought a toy for him yesterday and after a few tries, he is having a go at it himself and managing to play with it appropriatly for a few seconds at a time. He then just picks it up and lugs it around. While I am typing this, he has managed to turn the tv onSmile, so knows cause and effect.

My question is, Will he ever be able to understand words instructions and how do I get him to follow them? Hoping to start ABA soon, so hopng that would help, but would apreciate any advice in the meantime. Have the following books and planning to read them as soon as i get some time...

VB-MAPP, guide and protocol.
it takes two to talk...

OP posts:
dolfrog · 12/11/2011 19:40

realhousewife

APD is one of the first medical issues which requires a multi - discipline (multi - professional) assessment and diagnosis. And the biggest problem still is having a full understanding of the implications of living with APD, and how it can affect many areas of our day to day lives. What the leading researchers call a lack of joined up thinking, lots of information and understanding regarding some specific issues, but not brought together into an overall perspective all the potential issues.

Currently APD should be assessed and diagnosed by a multi- discipline team. An audiologist to assess and diagnose the APD issues, and the severity or degree of the auditory processing problems. A Speech and Language Pathologist to assess how the diagnosed APD issues can affect life long speech and language development. And a Psychologist to assess problems of living with the diagnosed APD problems. The biggest problem at this point in time is the lack of understanding of APD by these three different professions and professional bodies, and in some cases a reluctance or lack of willingness to understand APD. For may of these professionals the problem is that there is no known cure, which for many professionals is an unwanted over complication.

So living with APD is about understanding the limitations that APD imposes on each individual diagnosed as having APD, there are many various subtypes of APD, and more importantly understanding how each individual who has APD has developed their own alternative compensating cognitive abilities or coping strategies to work around their disability. This means that others need to understand how to use these alternative forms of communication, and possible variations of format may help with types of communication we have problems accessing. This has to be done on an individual basis due to complexities of the issues i have just tried to describe.

So in answer to your question, yes SALTs are part of the therapy process, unfortunately they are currently unable to provide a lifelong support option, which will really only be required each time the vocabulary. jargon, language we use in our daily lives changes as we progress through each new venture of life. ( we need help to pronounce and recognise new words, sets of words etc).

You are probably aware of the programs which claim to provide some help for those who have APD, and some have even been marketed as a cure. You could have a look at the research into some of these of programs

There are what are sometimes called FM systems, which were originally created for the hearing impaired, the speaker has a microphone, and the recipient has either a speaker or headphones. This provides a consistent good quality sound source, but does not cure or improve our processing abilities.

Living with APD is about anticipating what will happen tomorrow, anticipating the questions we may be asked, and the more familiar we are with these potential questions the better able we are to provide the best answers. Each new situation, task, social activity, may require an new set of coping strategies or for existing coping strategies to be modified, either of which will need to be integrated into our coping strategy library. So we like routines and familiar surroundings as it provides us with not too many unexpected processing problems, and provide some reminders of the coping strategies we may need for a specific task etc.

I hope this helps in some way.

kissingfrogs · 12/11/2011 21:31

That certainly does help in understanding what it is like to have APD Dolfrog. That last paragraph is particularly relevant and enlightening.

APD is the only explanation for my dd2s hearing and language difficulties. A recent hearing test showed no change in her hearing levels despite it being obvious her hearing has been poorer lately. She has a lot of new topics/language to learn at school now she is yr2, and although she is absorbing this it appears that her hearing/listening has taken a back seat to do so.

realhousewife · 12/11/2011 22:30

Thanks so much dolfrog the link directed me to this: www.ncbi.nlm.nih.gov/pubmed/22031675
which states that there is a successful test that can now be done. As the article was only written in September, it may be hard to find someone who can run the test. Or is this an old test that they were testing?

My dd has trouble with things like throwing and catching, dancing in time, singing in time - she has a general processing disorder so it would be worth doing a test IF it benefits her in some way. I was referenced to some computer programmes a while ago (in the US) I shall have another look at them.

But she's great at doing a simple task repeatedly (maths) and can concentrate for a long time.

dolfrog · 13/11/2011 00:01

realhousewife

It has been possible to diagnose APD for some years now, I was diagnosed back in 2003, so your audiologist is some years behind the current position in the UK. He probably needs some extra training, and qualifications to catch up, which is quite common around the UK ENT centres. They have been diagnosing APD in the USA for decades, we in the UK are playing catch up.

There will be quite a few position statement APD research papers in the next 9 months or so, as the various national lobby groups work towards a global definition of APD, and a set of Gold Standard APD diagnostic tests.

Some children can have co-morbid information processing and motor control issues, and it is best to identify each one where possible.
APD is about processing auditory (sound based) stimuli which includes speech.

you might like to have a look at the research regarding Computer-based auditory training (CBAT)

New posts on this thread. Refresh page