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SN children

Here are some suggested organisations that offer expert advice on special needs.

HIE (lack of oxygen at birth) and ASD link

27 replies

slowburner · 06/11/2011 21:31

i know I am new here, and I've asked a lot of questions and have little practical experience to offer on posts so apologies for the taking not giving.

I am trying to understand our possible future, we are lucky 15 mo DD survived her birth and that she is mobile, feeds herself, communicates in her own way and is generally a happy soul. However the fact remains she is at a much higher risk of both epilepsy and of CP. Researching today I happen across a paper which indicates there is a correlation between birth trauma and autism.

We've been told it is a waiting game to see how DD may be affected but I'd rather know the risks and then hope we avoid them than not know the risks and have them blindside me years down the line as I'm caring for one or more younger siblings. Hope that makes sense.

Has anyone happened across this information before? Tyia.

OP posts:
sneezecakesmum · 08/11/2011 21:13

Madwoman - DGS did the same at portage. Putting ball into box quite competently then after a bit, moved it to one side, looked B.. straight in the eye and dropped it on the floor, then laughed his head off! It was the first inkling we had that he had a naughty sense of humour!

Slowburner...children can sometimes get away with having no lasting disabilities despite sometimes extensive brain injury. stiffness can also loosen up over time with clenched fists becoming quite loose when relaxed, so the shoulder business may relax over the coming months. The brain can also rewire with neuroplasticity, but the right stimulus is needed. What madwoman says is right, if you get a dx and get the help now, the effects might become unnoticeable over time.

hildathebuilder · 09/11/2011 11:51

I would also add that getting the help now may make all the difference. I posted on hear in february after DS had been diagnosed with CP, I wasn't convinced, it didn't seem to fit (he was prem but no brain injury that we knew of). He has great fine motor (actually advanced for his actual let alone corrected age) and oromotor skills, but still has cp, due to his gross motor (which is late but not ridiculously so).

He also now has weekly physio and all sorts of other interventions which we accepted because the docs thought it may make a difference whatever the cause. I hate it but DS doesn't and I do think it may make a long term difference, and apart from my mental health not sure it will harm at all.

good luck.

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