Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Dreading return to school after holiday

9 replies

Outsideperspective · 06/11/2011 17:38

My ds struggles with school, and has many physical symptoms, as well as hours of night terrors.

He's been off school this week as half term, and it has been bliss. But I'm dreading tonight, as I'm 99% certain all symptoms will start during the night.

We are seeing the paeditrician for him this week, and the appointment cannot come soon enough.

I really can't decide whether I need to change school to a special school, or whether to home educate him. I'm hopng paed will be able to give us some answers/clues.

OP posts:
EllenJaneisnotmyname · 07/11/2011 20:22

How did it go last night and today? Do you have a DX for him, or any ideas of what might be DX? Is your DS getting any support at school?

Outsideperspective · 08/11/2011 21:18

I thought I had got away with it, was so relieved, then last night it started, the 1hr and 5 mins of screaming, the stomach cramps, and the sheer panic.

Came home from school today to say that the nativity play is in 3 weeks time, this will cause anxiety up until the day. Last year, he was too ill to even make it into school (vomitting and diarhoea) due to the stress, let alone perform. But he so wants to be in it.

Got appointment with paeditrician next week, from appointments with the GP I'm expecting end result will be a dx of aspergers.

But trying to keeping an open mind incase there are other causes that I haven't thought of yet.

OP posts:
EllenJaneisnotmyname · 08/11/2011 21:26

I'm sorry, Outside. Anxiety like that can be so crippling. There are others on the board with more experience who may be able to offer advice. Some have gone down the medication route with things like Prozac, I believe. May be worth searching for threads?

I'm 'lucky' that my DS isn't particularly anxious despite his ASD. He's more of a scream and shout for 20 mins then forget all about it type of boy. Smile

How old is your DS? Aspergers DX can take a long time to get, so you may be in for the long haul. Welcome, anyway. Smile

Outsideperspective · 08/11/2011 21:42

He's coming up to 7.

Thanks for the tip, I'll go and search for other threads.

Other than during the night my ds doesn't scream or shout, I think that's a big part of his problem, he bottles everything, and is so controlled, that his body can only release it when his defense is down. And I think it literally eats up inside of him, and hence the phsyical symptoms.

OP posts:
EllenJaneisnotmyname · 08/11/2011 21:48

Like chalk and cheese, then, our boys! My DS has no self control and doesn't bottle anything up, it's all on instant display, whatever mood he's in. Grin

Outsideperspective · 08/11/2011 21:53

Ah positives for both of us - I don't get the screaming/shouting out in public, you get expression of joy when you have done something he approves of (I presume). Grin

OP posts:
imogengladheart · 09/11/2011 07:58

This reply has been deleted

Message withdrawn at poster's request.

devientenigma · 09/11/2011 08:33

Just thought I would say Hi outside. Sorry I'm not going to be much help. However my son is exactly the same. It is a bit more of a complex case though and as yours seems to be mainstream there may be alternatives to look at 1st, like change of school, 121 etc.
My son is special school and always has been and is primarily down syndrome. He has been at home coming up to 2 year although still registered at his ss. You can't budge him to get him into school. Also has the nightmares, challenging behaviour etc. He does have issues the school are not willing to accommodate so not helpful. His statement is being re assessed and I will know more whats happening tomorrow. As it's the only ss in the borough and due to his statement it's harder to just up and move him. Is your dc statemented??
My son also has a clinical psycologist and psychiatrist, camhs here don't take dc with sld. He was put on prozac but doesn't take it. There isn't much meds they like to give him with his heart condition. Although since being out of school he seems better, he's still not without his problems. In fact when I had him out yesterday I noticed he's becoming a nervous wreck just being pushed along the street in his wheelchair. Since being out he has become less aggressive, more managable and more willing to listen. He still has his meltdows, some I know why and some not. I am more aware of his issues and causes. I never thought I would be able to do this and at times it does all get on top of me and I crave a break. It is hard keeping on top of the housework and washing but this is because he needs 24/7 supervision and dh works. It is tiring. I really feel you should explore all options before home ed.
Take care x

Outsideperspective · 09/11/2011 16:18

Thanks both for your supportive posts.

Bath time has to be planned, as long as it is planned then he is happy to have it, although he prefers to control what areas are going to be washed (i.e. sometimes his left shoulder is not to be washed on a particular evening, but in a week we get his whole body clean!)

A link that we have made which appears odd, is that if he has a night terror he doesn't wet the bed, but no night terror and he wets the bed, anyone else experienced this?

He is at independent school, and has been at the same place since he was 2. He didn't cope with large nurseries/play groups.

No not statemented yet, only just starting out on the dx route etc, hoping that it will end up with a statement. Have a couple of ASD specialist schools on our doorstep that only accept with a statement, and we feel that would be the right environment for him.

But also worry about taking him out of mainstream, will this affect him in later life, listing a special school on CVs rather than mainstream? But that is a long way down the path yet.

Like everyone on here, just want to help him in the best possible way I can.

OP posts:
New posts on this thread. Refresh page