I'm an regular, changed name slightly, hope you can work it out! Normally post about ds.
Anyway, my dd has issues, unilateral mild deafness (doesn't really affect her other than being more selectively deaf when she wants!) Severe migraines controlled with medication taken 3 times a day, but sleeps for Britain which amazingly is becoming more of an issue because she's asleep by 6:30 and I have to wake her at 7:30 to go to school and we're not getting homework done now. She's also now been dx with hypermobility. We're waiting for OT and physio appointments. The hypermobility limits the distance she'll walk without pain and moaning. Its also affecting her handwritting and school are currently waiting to see what OT say to help her. Physically she's slower than her class mates, she's a danger to all around her on a bike, she can't skip etc. She's really not bothered by it, she reads for Britain and holds her friendships that way because they all get her to read to them and she loves it! She just can't write with a pen. Given a computer she can write and spells really well. The combination of the tiredness from the migraines and the hypermobility seems to be the killer for her. She gets so tired so easily. She is missing out on things like parties etc as they're just too late for her. She won't be in the school play because its too late for her (she fell asleep on her chair at the end of year thing in July!). DLA isn't going to change any of that. In fact I don't know what DLA would change for her, hence why I wonder whether its worth the stress of the form.
Realisation of all her things have come on gradually over time and its only been the last week that I've realised quite how different she is from her peers and how much its built up to now. DS was obviously different from birth and we never wondered about if it was worth filling in the form, it was blatently obvious we should. What do you all think?