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Here are some suggested organisations that offer expert advice on special needs.

Original poster

special needs cot?

37 replies

geekgrrl · 30/12/2005 07:52

I need a proper cot for dd - she's 4.5 years old, and 3ft tall, big enough to climb out of a cot bed I think . She gets up several times every single bloody night and has done for two years now. There must be reasonably price huge cots out there??
Vallergan sort of worked for a while but she seems totally resistant to it now. We see a behavioural support nurse from the CDC who is lovely but hasn't come up with anything helpful. I'm so so so so so so fed up - it's been 7 years now since we last had decent sleep.
HELP.

OP posts:
bobbybobbobbingalong · 30/12/2005 08:00

My suggestion is a little left of centre - but what about one of those man size cots for men that have a baby fetish? I'm honestly not trying to be funny, but they must be HUGE!

sparklymieow · 30/12/2005 08:02

Have you contacted your social services OT dept. They can supply SN cots.

sparklymieow · 30/12/2005 08:09

I found this on a SN board I am on, priced at 850 pounds it might be out of your price range here

Original poster
geekgrrl · 30/12/2005 08:13

bobbybob, well that's very good thinking outside the box but they're probably not purpose-built and the sides could collapse/ there might be an entrapment risk?
mieow, I didn't know that, thank you very much. SS came out to assess us for DP in July and I've not heard anything since . I'll ring the woman and try to find out more. I'm getting really desperate here - had to wake dh last night to tell him I felt like killing dd. In the light of day it all doesn't seem so bad, but in the middle of the night it a different thing.

OP posts:
Original poster
geekgrrl · 30/12/2005 08:14

Those are the ones I found, but it's just a lot of money to spend on something we'll hopefully only need for a couple of years (being optimistic here)

OP posts:
sparklymieow · 30/12/2005 08:15

I know what you mean, Dd1 wakes up every night and it makes me turn into the mother from hell. hope you get it sorted. You can get cots that actually have 'lids' on them to stop the child escaping.

Original poster
geekgrrl · 30/12/2005 08:16

oooh, a cage. that sounds like just the ticket.

OP posts:
sparklymieow · 30/12/2005 08:19

what about this ???

sparklymieow · 30/12/2005 08:20

oh sorry just seen the prices, maybe not

FairyTaleinNewYork · 30/12/2005 08:23

i gasped at the price, but i could do with a padded cell for me.

sparklymieow · 30/12/2005 08:30

lol @ FTINY

Original poster
geekgrrl · 30/12/2005 08:32

they look nice, don't they? Only if you get charity funding though.

OP posts:
sparklymieow · 30/12/2005 08:33

Phone SS today

dizzy34 · 30/12/2005 10:32

Hi geekgrrl,
what is your daughters condition? who prescribed the vallergan? will they not prescribe you something else? ds2 has been prescribed chloral hydrate, but he is diagnosed with a rare epeilpesy syndrome, and is unable to establish night from day, it might be worth asking though. Depending on what her condition is, will ssd not purchase a bed for you?

Original poster
geekgrrl · 30/12/2005 10:43

Hi there dizzy, my dd has Down's syndrome, the Vallergan was prescribed by our GP and confirmed as a good thing by her paediatrician. She's had chloral before but only when she was poorly and in hospital and giving herself respiratory distress by crying. It tastes absolutely vile I think! It was ok when she had an ng tube as a baby but later on she had it as sedation for a medical procedure and worked herself up into a total state over the taste, poor thing.

I've just spoken to the behavioural nurse we see who said she'd ask the paed whether there's anything else we could have just to get a break. She also thinks we should do a sticker chart for dd but we're just not getting a single good night which merits a sticker.

OP posts:
collision · 30/12/2005 11:31

What about a sturdy travel cot?

They are much bigger than a normal cot and we found that ds2 slept much better in it so he is in a travel cot all the time now.

The sides are much higher as well.

collision · 30/12/2005 11:31

What about a sturdy travel cot?

They are much bigger than a normal cot and we found that ds2 slept much better in it so he is in a travel cot all the time now.

The sides are much higher as well.

getbakainyourjimjams · 30/12/2005 14:01

We use two stair gates (the travel barriers so they don't open, if you put them up tightly a child can;t undo them) on top of each other.

Alternatively if you have lots of cash, or want to try and get funding how about a safespace . When I win 50 million on the lottery tonight I'm going to get one and turn it into a sensory room

itllbelonelythisdavros · 30/12/2005 14:39

I've seen one with a "lid" in the Fledglings catalogue. Might be one already linked to here but try them, I think its www.fledglings.org.uk

terryschonkyorange · 30/12/2005 18:27

What about these?

centromed cots

We'll probably end up choosing something like the Scotia for dd when she's a bit bigger. I've no idea on prices though.

terryschonkyorange · 30/12/2005 18:27

That's if I haven't won the lottery by then and have a top of the range Safespace fitted

itllbelonelythisdavros · 30/12/2005 18:37

Quite fancy a safespace for myself with a big padlock on it and some headphones, could be just the trick.

terryschonkyorange · 30/12/2005 18:38

pmsl Davros

getbakainyourjimjams · 30/12/2005 19:57

God I'd love a safe space!

MulledMerlot · 30/12/2005 22:50

How about this Again, cant imagine its cheap, but would be worth looking into.

Thanks for raising this subject. I'm sure we are going to have to go down this path at some stage too