Manchester neuro physio

[slowburner]

Hi,
My daughter is 15 months, she has a dominant left side but has a full range of normal controlled movement in her right, she just doesn't use her arm much unless she is totally distracted. But she can crawl, walk, throw a ball, has a pincer grip, waves and claps with both sides.

Ou of the blue the physio has said that the stiff right side is now CP, I was actually sick when she said it as we had been reassured over and over that the stiffness was just stiffness which would ease with time. DD has only just started walking and so is very unsteady and holding her shoulders high to balance, it is obvious her right shoulder is higher than her left but when she sits or is standing still these shoulders are level again.

Physio won't help. Just said there is nothing we can do that would help, we can pass to her right, or get her to push things but although casting might the physio isn't prepared to even consider it until DD is 18 months.

So. I want to do constraint induced movement therapy, the only place I can find to offer this is the Manchester neuro physio clinic. It will mean an outlay of over a thousand pounds and we will have to relocate to Manchester from the south for at least two weeks but I think the results would be worth it.

BUT I can't find any reviews, has anyone heard of them or better yet used them?

Thank you so much for reading.

Am marking place as can't respond now! Will try to get back to this tomorrow

Thank you, very much appreciated.

Ok, Sorry it took so long. is there any particular reason you want to do Constraint induced movement therapy rather that other sorts of physio? I can see what your NHS physio told you which seems a bit defeatist but personally I'm not sure that CiMt is the way to go for little ones.

DS is now 6 and has CP and we have had intensive physio in blocks 3 or 4 times a year since he was 2, and although we have now put this on hold for a year or so it has had a huge impact on him. We have also had lots of weekly physio sessions with conductive education from when he was about your DD's age through to about 3 or 4 (can't remember exactly!). Physio can make all the difference and imo will definitely help your DD. However constraint induced movement therapy is very, very hard on the child as it relies on repetitive movements of the same task which requires concentration levels way beyond a 15 month old.

I would look personally at gong to a conductive education place - I'm not sure where you are in the south but there is the www.dvltrust.org.uk/# which has two schools for parents, one is sussex and one is suffolk. There is www.smallstepssfp.org.uk/ in Putney in London which is where we went. There is also www.rainbowcentre.org/ in Fareham. If these are not in your area you can google for more. From 2.5 we started going here footstepscentre.com/ although they only take them for intensive courses from 3 now. There is the www.cppcltd.co.uk/ in Flitwick which does constraint practises as well if you are really set on that.

I know you asked specifically about the Manchester Neruo Physio clinic and I can't answer anything about that as I've never been - although it does look good from it's website and it would be a good place to go for private physio if you are local I think but personally i think there are better options for physio geared for little ones with CP.

I hope that helps slightly - good luck!

Thank you for your reply. The reason for constraint therapy is to target the one sided nature of her stiffness, she also has a fantastic full range of movement which is evident Is soon as the 'good' side is restricted. Also we have no alternative physio options where we live in east anglia so Manchester is as easy as London in some ways. I will look further into conductI've education.