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Update on ADOS - had review today

8 replies

ReaperView · 27/10/2011 15:12

DS2 does not have ASD and his issues are likely to be covered by his previous diagnosis of Dyspraxia. We've been signed off CAMHS now.

OP posts:
EllenJaneisnotmyname · 27/10/2011 15:25

How are you feeling, ReaperView? Is your DS getting the support he needs?

starfish71 · 27/10/2011 15:49

Are you happy that this the outcome? Interested as DS1 has dyspraxia and didn't quite meet all criteria for ASD but still have doubts and am meeting with CAMHS next week.

Hope you ok.

ReaperView · 28/10/2011 16:35

I'm mixed actually. In a way I'm pleased that he scored low but i'm not convinced that his 'issues' are down to Dyspraxia solely. They made me feel like all he needed and all he has ever needed was a little more attention, one to one and better interaction.
As if i was looking for a label rather than admitting that my parenting wasn't working with him (where it does for the other DCs)

He is supported well at school, he goes out in small groups or individually to do things with SENCO and TA's and his current teacher has a child with Dyspraxia so she is ace with him.
HE responds so well in small groups so they could never see the full picture when his attention has wandered so far that he's hard to get back and his anger doesn't come out when he is one to one because you can see it build easier.

I dunno, maybe everyone else was right all along and i put him thru this needlessly.

OP posts:
EllenJaneisnotmyname · 28/10/2011 16:59

In my experience DC with Dyspraxia have a lot of crossover with ASD and a lot of the 'symptoms' or behaviours involve social skills and sensory problems as well as the physical ones. You were completely right to get him assessed. You are not to blame for his behaviour. You know that, really, don't you? Yes, you will have to parent him differently from a NT child, he will need more deliberate interactions etc, but if he didn't have dyspraxia you wouldn't need to.

((((hugs)))) Stick around, there's lots of experience and support available here.

I assume you've read the Madeleine Portwood book? My DS has ASD as his DX but he has some dyspraxic symptoms. The child I support has DCD and ASD, but his mum feels the ASD DX isn't correct and all his difficulties could be DCD and she recommends the M P book.

ReaperView · 28/10/2011 17:04

No i haven't read it. Pursuing the help that i should have been able to give him in the first place has cost me friendships and now my marriage.

OP posts:
EllenJaneisnotmyname · 28/10/2011 17:16

Oh, Reaper, you are having a hard time. Sad It's not your fault. Those friends must have been fair weather ones. Marriages of parents of children with SN are much more likely to breakdown. My dickhead of a soon to be ex H likes to think my DS had nothing to do with his midlife crisis, but I know better.

starfish71 · 28/10/2011 17:24

You really sound as though you are having a bad time Reaper. It is really hard having a child or children with SN and I know how all consuming it is.

Thank you for mentioning the book by Madeleine Portwood EllenJane, I will look that up, Have heard that there are lots of crossovers between ASD and Dyspraxia and maybe I am clouded that younger DS has an ASD dx.

Sorry to hijack Reaper, just wanted to say I understand how hard it is and my marriage is also strained to limit at moment.

You are doing everything you can x

coff33pot · 28/10/2011 19:36

Reaper you did the right thing. You recognised something was not quite right and investigated it. That is what I call a good caring mum x

My marriage is as strained as it could be and not for any other reason than DS with the endless appointments, no answers and battles at school. Seems to be the topic of convo every day with little room for anything else. So I do sympathise with the strain you are under.

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