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Here are some suggested organisations that offer expert advice on special needs.

Advice on ABA please

28 replies

Soutty · 15/10/2011 14:18

Hi

I'm new to Mumsnet and this is the first time I've posted on this board.

My DS has just turned 4. I have had concerns about him since last year as his speech is very delayed and his social communication is poor in other ways too. Left to his own devices he would count (he can count to well over 100) add, spell and recite the alphabet most of the time.

He is being assessed and all reports point out his speech delay, poor eye contact, occasional hand flapping, extreme precociousness in some areas (reading labels, counting) and other symptoms which indicate some form of ASD.

A year has gone by and all I have been offered is a workshop which frankly stated the obvious. It may have been of help to the parents of a child who had speech delay due to being plonked in front of the tv all day long but was otherwise of little use.

They say he has met all targets so far but he is still way behind the average 4 year old, speaking in 3-4 word sentences most of the time and if he can get what he wants by saying less he will. He doesn't seem to understand the ping pong nature of conversation at all.

I have been reading a lot about ABA and it's given me some hope. I am trying to learn about the techniques but if possible I want to get him on a programme. Does anyone know how to go about this in the UK and how much it costs. Does it have to be 40 hours a week? Has anyone had success by doing it themselves? The problem is that I work 3 days a week. On those days he attends pre-school which he copes with and enjoys and I'm sure it's helped him along a bit but I really feel that he needs one to one attention.

Does the council have a duty to provide speech therapy before he gets a diagnosis? Money is tight but I am prepared to make sacrifices to ensure he gets as much help as I can afford - still though I want to make sure that he is getting all that he is entitled to.

Sorry this is so long but I am really at sea with all this - I've only just come to terms with the fact that he probably has ASD and I'm feeling pretty alone and scared about the future.

Thanks in advance.

OP posts:
electra · 19/10/2011 21:37

This reply has been deleted

Message withdrawn at poster's request.

dottynosleep · 19/10/2011 22:26

I completely agree with quality over quantity.

^^ Absolutely.

We did 20 hours a week for a year & had fantastic results. Then we lost our brilliant tutors & have been through 3 since then - we are struggling along with a maintenance programme of 6 hours a week now because we simply can't find tutors who can cope with a HF child who can run rings around them & they don't have the skills to teach complex social & language skills. We've funded our programme through DLA/CA & CTC, we pay tutors £10-15/hour with consultant fees on top of that. Our lead tutor supervises but our situation is far from ideal.

'Bad' ABA is very bad & should be avoided, imo you'd be better off using ABA techniques yourself (get consultant to advise & teach you - someone who is available for phone/email/skype contact when you need them & doesn't charge for reasonable contact) & employing a lovely NNEB for a few hours a week of play therapy & respite than trying to make a full programme work with second rate tutors. It far worse than 'bad' LA intervention which is merely ineffective - we have behavioural & language issues that have been so strongly reinforced (over a matter of weeks) that it has taken months & months to undo them (this was from a very highly recommended, expensive with references I checked who was a disaster for ds in the three weeks she worked with us).

Danielleclark · 11/11/2011 20:25

Hi,

Sorry to barge in on the conversation, but I am a Psychology graduate currently studying an MSc in Mental Health Studies and I am looking to get into ABA. I have previous experience working with children with autism doing play therapy as well as having Makaton training. I am extremely passionate about working with children and I have the enthusiasm and patience required to work with children with autism. I am based in Kent but have my own car and i am willing to travel, I also have an up to date enhanced CRB.

If anyone requires an ABA tutor please contact me, I am registered with PEACH and I am looking to do an training course in the near future.

Danielle

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