DS drank at least 100ml of water in the space of 10 minutes today using his honeybear bottle I am so proud of him. Not bad for a little man who took NOTHING orally until about 7 weeks ago!
We were talking about him trying to drink some more and trying to have bigger mouthfuls(he's been averaging 20mls per day @ 1ml per drink, which is not a lot but more than he ever managed before). In the car on way back from hospital appointment I could hear lots of slurping/burping. Told him he didn't need to do it all at once but he replied,' but I wanted to do a surprise for you Mummy. Finished!' Of course we went straight out and bought a new toy which of course he has no need for....lol!!
I am not entirely sure what is going on with my little man but I'm completely convinced that BD has had a big impact. All of his SPD issues seem to be less heightened now
On a little sad note. The appt at RHSC was with the cleft team, post op review. All is well and he's doing great and they are happy with surgery but he will most likely need to have more. The sad bit is that it seems that a fair bit of his speech difficulty is A-typical (not unusual for Luuk to be A-typical) for kids with clefts and they now think he has a developmental speech delay . Seeing SALTS next week so will find out a bit more. This is the first time there has been a medical indication of a congnitive delay. I know it's not a disaster and doesn't change him in any way, just worried that my biggy fears will start to take form. I have always said that his early experience and very low O2 levels for 4 weeks had to have impacted somewhere and until now it hasn't really been apparent. I suppose I'm a bit aprehensive as we were told that due to all of his other abnormalities, his brain should actually be, and I quote the geneticist here, 'mush'. Have always been aware that he may develop slowly ( hasn't yetH, or that he may develop until a certain age and then slow down, or may even regress, but although I have been aware, not sure how prepared I actually am. He does have lots of quirks and I love him more than life itself. We will continue to nurture and cherish him to be the best he can be. Just a shame that this may be rearing it's head, just when his physical health is on the up and up.........