Background; DD1 has SLD and a bunch of other stuff, but the exciting part is the Epilepsy. Which is fairly severe and very difficult to manage. Her consultant is off for the forseeable, and the hospital have a temp in. There is a theoretical escalation point to the regional neurologist but he is reluctant to make big changes, pending the consultant's return but mostly pending investigation for brain surgery at a London hospital to stop the seizures.
More background: the London hospital are supposed to have arranged loads of tests but we've had no appointment letters and they won't return my calls. So we are in limbo, and DD1 chooses this moment to have a major wobble in seizure control. Her emergency meds are only partially effective. Nobody knows how much to give her, or what of. For the moment we are giving her what we have used in the past, as an extra med at night.
The temp consultant (who I pray I am seriously misjudging, but looks extremely wet behind the ears to me) is too timid to prescribe, so has booked an emergency eeg for tomorrow afternoon. In the meantime, we can't give her any emergency meds at all because that would duff the eeg results.
She is quite likely to go horibly pear-shaped tonight. Fingers crossed she won't, and fingers crossed that if she does we can get her to hospital in time. (We are quicker than the ambulance ime.)
I am just so stressed about it. And I am usually so calm about this stuff, I just deal with it. I think the thing is, I deal with it as it comes. Now I've got the luxury of advance warning, and it's not nice at all. 