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Anyone got a 'mickey button'

4 replies

dizzy34 · 20/12/2005 18:03

Hi, my ds has a gastrostomy 'peg' tube at the moment. he has had it for 2yrs. it is really sore at the moment and his community paed nurse thinks that there is too much 'olay' in it and that when it moves it is causing him pain and irrating the raised skin. she is referring him back the gastro doc to discuss having the mickey button fitted. i have been told by a few parents that the mickeys get infected more than the pegs, does anyone know if this is true??

OP posts:
sam1984 · 20/12/2005 18:54

my dd has a peg in, i wanted hers 2 b changed 2 a mickey button but heard that i'd ave 2 learn 2 change d mickey button myself n it only lasts 3 months. so i thought it'd b betta 2 keep d peg in as this lasts a couple of years, but wen dat needs changin it'll ave 2 b done under anasthetic again.

dizzy34 · 20/12/2005 20:08

Hiya, the changing it doesnt bother me as such as long as someone has shown me. How old is your daughter? Does she grab her peg? DS doesnt grab it on purpose cos he cant really move his arms but he will hold it if he feels it on his hand. we tend to tuck it in his pocket and all his vests have holes sewn into them for the tube to go through

OP posts:
sam1984 · 20/12/2005 22:53

she's 19m. i hide d peg as well. i sumtimes catch it on the bath seat . from wot u said about em bein more prone 2 infection wit d mickey button, this worries me as she does catch infections very easily.

sam1984 · 20/12/2005 22:56

another thing dat worries me is dat she's only just started rollin over but at the same time as me being happy she rolls over in her sleep now n this makes her sick. it sounds mean but i wish i cld strap her in2 bed so dat she doesn't roll over in her sleep.

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