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Original poster

Got psychiatrist appointment in 1 hour

65 replies

coff33pot · 05/10/2011 11:58

DS appt day has finally arrived Smile

Dont know if I will get a dx today or not. Camhs did say this was the final one to see and he can dx.

Butterflies in my stomach now. Dont know what to expect. I know there will also be a new camhs woman as original one has gone on another path so not met the psych or this woman yet which makes me edgy just like DS. Hope my nerves dont kick in and I miss things out. Needs some mumsnet luck lol

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davidsotherhalf · 21/10/2011 08:10

coff this sounds just like my ds report from many yrs ago....he's 23 now and we found out last week that he had a dx at age 7 but proffesionals thought it would be better to say complex needs to us, he got a report from dla and thats how we found out, he even phoned gp and asked him to explain dx as he didn't think he had one and thought it was a mistake. says he has asd adhd and ld, i had to fight to get him statemented and it took till he was 15 as i had been saying he didn't have a dx apart from complex needs. i got the pat on the back everytime we asked for help so they could refuse

squidworth · 21/10/2011 10:04

As if it is that easy for them to form friendships, even when DS1 began to have a few friends at the end of primary the parents were horrified. They where all tea and sympathy as long as it did not effect their little angle. The sad thing is when your child has a dx the so called profs do view your child differently. My DS now at sec school now gets invites from them * same parents as some of them have now found how much exclusion hurts.

Original poster
coff33pot · 21/10/2011 12:44

I dont fit with the parents myself let alone my son. I have a habit of saying things like it is Grin Its all small town down here, I cannot stand gossip, or back stabbing and so much goes on that I just plain dont do the mum coffee mornings. There is only 1 mother I can relate to and her son has ADHD and on meds and I caught her crying once from frustration on ppl thinking its her fault, I didnt know at the time that my DS had any issues and I did give her a hug and support but the other mothers were.....how can we say......walking a 6 feet circle around us for fear of catching something. Funnily enough I have never seen her again so I would guess she has moved. DS has family who we visit and cousins those are his practice lessons and they support him with it and have patience. The rest are joe public on a good day.

I am just not sure about this meeting but also know if I cut camhs off then its going to no doubt be another black mark for me. Its just that I cant see the point of putting DS through these visits for no sensible outcome but torture for him.

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mariamagdalena · 21/10/2011 18:25

Could you go without DS? Or email to postpone?

Personally, if there's any chance at all he might kick off in front of her, I'd be tempted by the nuclear option. DS in full hyper defiant rigidity mode followed by meltdown in front of consultant and registrar was very helpful. As was me explaining this was nothing compared to at home whilst demonstrating perfect crisis parenting strategies Grin

mind you, dd was nearly as bad that day, thankfully she was too young to bother with or we'd have got a buy one get one free diagnosis Wink

Original poster
coff33pot · 21/10/2011 19:51

LOL at buy one get one free Grin

I phoned to find out what this meeting was about and was told from the secretary as far as she was aware it was for a "little chat" to make sure I understood everything that was in the psychiatrists report Hmm

Soooo I told her no I didnt understand it at all as it was contradictory, he has strong nature/sensitive yet his needs are complex. He told me in the meeting he had so many complex issues going on that nothing will be sorted overnight. But that wasn't in the report. Told me in the meeting to just plain go and get his hair cut and funnily enough that isnt in his report either and I wonder why. I said I am thinking of a second opinion as there is no suggestion of help let alone a proper explanation of my sons needs in that report and I would like each "complex" issue defined or diagnosed please so that I can help him........

Yes....secretary had no idea what to say lol apart from their actual psych is coming back in January.

I am going in on Monday on my own. I need to play cool as I am dragging it out till I have the salt report at least and then its private I go as this is too damn long winded. :)

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SOTIRIA · 22/10/2011 23:35

If the meeting is intended to be a little chat about the report then there is no reason to ask you to bring your son along. This is also contradictory. Perhaps the stand in psych is dragging things out for some reason, until the actual psych gets back. It seems there is something unusual going on here. Is the secretary trying to give you a hint?

Original poster
coff33pot · 22/10/2011 23:51

I think she is SOTIRIA as she said on the phone that although it is not her place to say they have their own psychiatrist starting come January which means their multi team will be up and running. Its been disabled without one you see since last Jan. So I think reading between the lines I just may get a second opinion through that. The report I had was useless in any recommendations at all. There were none apart from the offer of them visiting school to put forward some helpful suggestions. And that I was doing well so far (cant remember the words for getting teasy) There really wasn't anything else in it it was only 1 page and I printed 2 paragraphs here.

I really wont know till Monday. I will play ball to a point but there is no way I would take DS again unless it was for a diagnostic test then that would be important, chats are out.

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lisad123 · 23/10/2011 09:48

just quickly read, so sorry if already mentioned, but you can ask for appointment with GOSH autism team for a second opinion.
here
everyone i know who has gone, has said they are great and spend alot of time looking at the child and are very indepth.

FanjoForTheMuahahammaries · 23/10/2011 09:51

I just saw this, that Dr sounds like an arse.

Original poster
coff33pot · 23/10/2011 12:36

Yes the Dr was an arse lol. And thanks lisad maria also put the link up for me. This is my next move if I dont hear anything positive tomorrow. Failing that its the private route. The salt was nice and supportive and I am hanging on purely for her report in order to help DS and his statement too. :)

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Original poster
coff33pot · 27/10/2011 16:22

Well an update as such. Didnt get to appointment on Monday. Infact was on the way in the car when I got a call to say woman was sick so turned around and went home grrrrr.

The MH Nurse phoned me today saying she was back and would like to see me next week. Suggested we discuss report and its contents and where we go with DS from there. I told her on phone that I want all his issues defined, dx'd, and discussed and that "complex needs" is not helpful at all where DS is concerned as we dont know where to go from here or access what help for him.
She did say I must say to you that you have the right to request a second opinion. I did quote the new NICE guidelines and she said yes she new of them and thats why she brought the suggestion up.

I think reading between lines she in some way agrees with me that I just cant accept and stop here for DS sake.

She also said she has not made arrangements to approach school at the moment with regard to any advice for them as she wants to leave it till she knows DS is still under her?

Dont know what this means but maybe just maybe I am going to get a second opinion for him :)

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Ben10WasTheSpawnNowWeLoveLego · 27/10/2011 17:39

Sounds to me that you have someone in your corner (at last). Hopefully your meeting next week will be fruitful :)

Original poster
coff33pot · 27/10/2011 18:45

Thanks Ben10 I certainly hope so :) I dont how long it takes to get a second opinion but we shall see.

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SOTIRIA · 28/10/2011 22:38

I wonder when they are going to issue appointments for the new psych. If you were on a waiting list to see them you may be one of the first to be seen. I hope the meeting with MH next week goes well. It sounds slightly fishy that they cancelled your appointment but maybe it's coincidence. It seems that they know that the service you've received is unprofessional but they can't say so directly.

Original poster
coff33pot · 02/11/2011 16:11

Well I went to the meeting which really wasnt very long at all (thank goodness)

Straight away the MH Nurse said she can undertstand why I wasnt impressed with the report although she is able to work with the report to help DS.

I asked her how? he has diagnosed "complex needs" and that can cover a multitude of things but doesnt help me help my DS. Furthermore she must at least appreciate that one psychiatrist has said my DS doesnt have AS/ASD by stating fortunately we did not see followed by although it is not appropriate to label, however......then go on to say he is complex.

I agree that he is indeed complex but I want EACH need diagnosed, defined and explained in a detailed report along with implementations and stratagies to help him. It is unfair to him and my family to leave us in the dark with no idea where to go from here.

She agreed and said she will reinstate him on the Pathway? Also said she doesnt see why we should all start at the beginning seeing as a SALT is already mid process of assessment so is getting in touch with her. And getting hold of OT and chasing up the scoring from the form I completed in august! But OTs are goldust but she does agree that in getting sensory diet help may be half the battle in helping him concentrate.

Now I have to put in writing a request for second opinion for a proper assessment.

I am in mid process of completing a DAWBA assessment also and from my part of completion it is stating high dignoses rate for AS/ASD, ODD, SPD, behavioural and Tourettes/motor and verbal tics. Got to wait for the school to finish their part for a final clinical rating. This mum is not going to give up :)

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