When did u know??

[lisad123]

seen a few threads on behavioural threads with concerned parents of young children. I see most people reply "seems fine to me, relax" ect. Im never one to dismiss a concerned mummy, as they often know better.
BUT when did you notice and raise concerns??
I remember dd1 was very young, certainly under 2 years but i didnt get a dx for her till 5 years. I allowed health proffessionals to dismiss my concerns, even with her physical delays.
With dd2 i guess i buried my head in sand for a while, but then just before 2 years it became clear (with a little prod from my friend), and she got working dx at 2.6 and full dx at 3years.

Probably 12 months when he was anxious about everything new and was already delayed, but didn't think it was ASD, thought it was all related to his eye condition. Only considered ASD at end of this august when the geneticist mentioned he seemed borderline.

For us it was around 15-16 months. DD hit all her milestones except the pointing. Everything else she did on time and she always had eye contact and had a few words at 12 months which she then lost a few months later.

She literally went from a happy smiley child to a very quiet 'in her own world' little girl within weeks, very scary :(

2 years 3 months when DS was being naughty at nursery and then within days lost almost all his previous functional skills. Dx with autism by us off the internet within days - although I did alot of is he, isn't he, grasping at straws. He had been 'preoccupied' with the alphabet for about 3 months before that but I just put that down to him being a genius (as you do). Really honestly was nothing before that - was an easier toddler in some ways than his brothers - less clingy -but a typical baby. Although he didn't feed as well as the other 2 from newborn and I sort of remember the interaction when bf as being a bit different perhaps. Talked early (8 months to 27 months) then stopped directing his language at people. Crawled slightly later but took ages to walk - was about 16months but i never thought he wouldn't walk, I wasn't bothered as he cruised around. But he did used to make eye contact, was social, did say Mummy and Daddy, did hug us all the time, did play with his brothers, did point, did bring us books and toys - all of which went. Getting some of it back with alot of hard work but a long way to go and a very very different child.

From a few days old :( DS2 couldn't latch on, couldn't suckle at all and the midwives were concerned at how floppy he was. By 6 weeks he had failed his first check up.. no tracking zero head control, no smiling (he didn't smile til he was 11 months old!) We saw the neuro by 3 months.

Every possible disorder was bandied about, cp, 'brain damage' EDS, metabolic disorders. He;s 14 now, diagnosed with ASD, mod/severe learning difficulties , hypotonia, scoliosis..

I was so so so terrified, and being my 4th child was so aware of how different he was. I wish I could go back and tell my 29 yr old self that it would be ok.. he is the centre of our world, the hub of our family and perfect just the way he is:)

From the start with elder DS, nothing like my daughters. But everyone told me I was wrong/paranoid/had rose tinted glasses with the girls etc. MIL even taped his ears down and blamed me for squashing them out when i was BF'ing!
he was 2 and 3 months when we got him diagnosed with Fragile X syndrome.
Younger DS was tested very young as a precaution and because he too wasn't reaching his milestones and sadly has it too.

Lougle - wow like so so many stories on this thread your account is so shocking but at the same time so familiar to me.

ds was always a very hardwork colicky, velcro baby. I carried him everywhere in a sling, sang to him, kept up the breastfeeding despite all the shennanigans. He hit his early milestones early or on time but by 1 his progress was slowing. First notived his poor attention then motor and speech delays. But by this time he was very loving, happy, playful boy (with massive meltdowns/anxiety etc when things went wrong).

Thought perhaps he is just quirky/energetic/inattentive/latedeveloper but nagging doubts so kept mentioning it but fobbed off at 2 and 2.5 by both HV and GP.

First week of pre-school for ds just before he turned 3. I stayed for a session and being able to see him with with 20 peers was a massive lightbulb. Told not to worry at 3 by pre-school. Childminder who off and on had delicately raised concerns agreed there was a problem and gave me courage to insist gp referred me to paed.

got seen at 3.5. Dx with global developmental delay and left to languish on waiting lists for OT and SALT with no further support not even a rubbishy photocopy.

Circus begins

-current dx gdd by paed, dispraxic by OT, asd by everyone but long lists for formal dx, adhd (by me!!! but not bothering to pursue that one just yet), absence seizures. We are undergoing genetic testing which may finally find a reason.
Now at 5.5 ds is in mainstream and repeating reception with statement and 1to1. He told me this morning that he loves school!

Medusa - love your comment about how you wished you could tell your 29 year old self not to worry.

oh and Dawn - love the GOSH consultant!