Have dx removed - how? And do I need to? Advice please.

[YinLi]

I need a bit of advice and I hope someone here could help me.

DS, now 8yo was diagnosed with moderate ASD at the age of 2.5 (and we were warned that it could be upgraded to "severe" later). He was non-verbal, wasn't toilet trained, had constant meltdowns etc. Then when he was 4 we all moved abroad (I also had DS2 and DD, twins by then) and we lived outside the UK until 2 years ago. Now we are back (in a different town), DS1 is in mainstream school with no support, he is academically bright, popular, we have no problems. But a friend of ours who knows his history commented a week ago that I should have his dx removed so it does not stay on his records and does not cause him problems in later life.

Does anyone know how to do this? Or if I really have to? Do I have to hunt down all the people who were involved in assessing him etc? Or should I just leave it? Can it cause him problems later? I'm a bit worried... any help is appreciated.

Hi Yinli, great story!
How old was your son when he started talking?

i have to say though that at 2.5 years old they can never tell what the outcome of Autisim will be. My friends little boy was dx at 2.5 and they were told he would never talk, never toilet train, never like being with others, would never go to MS school, BUT I spend alot of time with him and he is amazing. He talks, he makes conversation, is toilet trained, goes to a MS school and is a truely wonderful boy. All Im trying to say is, while Im sure your time in china may have made a difference, he may have done the same here. My DD2 was dx at 3 and doing very well. ASD is a moveable scale.

Im sorry you have found some comments here upsetting and as a rule we are a supportive bunch but i guess its hard for many of us to understand how you would allow someone to harm your child for behaving in a way that they have no control over. :(
I wish you all well, especially your DS, who sounds wonderful :)

sleepyhorse, he was 4 (almost 5) when we moved to China and he started to speak on his 2nd day at school. We were like "YAY! He SPEAKS! while everybody else around us was like "of course he speaks, why wouldn't he?"

lisad Thank you, he is doing fine. Spent this afternoon teaching 2 friends from school to do tai chi. One of them fell into the pond... [hm] .. and I had to dress him in DS1's clothes for when his mum came to pick him up, but his mum is great and just laughed.

It is interesting about tai chi too. I had heard that it was similar to retained reflex therapy as it involves very slow controlled movements.
Did/does your son do tai chi on a regular basis ? Sounds like he had a fun afternoon!