Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

Weekend away - I didn't cope very well

12 replies

littleredcorvette · 06/12/2005 10:20

Against my better judgement I agreed to go away for the weekend with ds (global delayed development and nystagmus) and dh together with two other couples and their NT children. I tried hard not to compare ds with the other two boys who are younger than him, but it was hard not to. Watching them walking, running around, talking, feeding themselves (all of the things ds can't do) really upset me and I ended up in floods of tears.
My ds is such a lovely little boy with a gorgeous smile and seeing him next to the the other children was just heartbreaking.
Please tell me that it gets easier as I hate feeling like this

OP posts:
Socci · 06/12/2005 10:59

This reply has been deleted

Message withdrawn

heartinthecountry · 06/12/2005 12:38

It is hard littlered...I'm not sure if it gets easier. Maybe you just get good at avoiding these sort of situations .

I find with me that it really depends how I am feeling about dd at the time whether it bothers me or not. If I am feeling positive and like she is doing well and progressing in her own way then I tend to be okay. But if I am feeling at all down then seeing other NT kids always makes me feel dreadful.

ThecattleareMerloting · 06/12/2005 13:04

That must have been very hard for you littlered

It really `stings' when ds (2 years) is surrounded by little ones his age who are NT. You dont begrudge the others, but it is so very hard.

My ds loves his mainstream nursery, but tbh, when I pick him up it always strikes me how strange the situation is - a bit like a year old being at a preschool

I think you did very well to get through the weekend. I am sure I would have not done any better if it is any consolation

Epiffany · 06/12/2005 13:57

LRC
my dd (3) has mild developmental/gross motor delay and nystagmus too, part of her Noonan Syndrome.
She too is smily happy gorgeous. But put her with kids the same age - actually I rarely do to be honest, too painful
I totally know what you mean
xx

Epiffany · 06/12/2005 14:03

LRC I had not seen you posting here before so I just looked up your old posts.
I noticed you mentioned your ds has tinted prism lenses for nystagmus?
My dd is going to opthamologist consultant on friday to be checked for lenses, she is also probably long sighted, I was not aware any lenses were available to help nystagmus

Sorry for thread hijack honey...
Maybe I could CAT you?

anniebear · 06/12/2005 14:19

Arrrh, poor you

At least you went and gave it a go thought, good on you!

Saker · 06/12/2005 15:52

I totally sympathise, having gone into preschool with Ds2 at the last minute as his one to one was off. I am doing fine and then suddenly it hits me how he will ever cope in life and I feel like bursting into tears. If possible avoid, but it's not always possible.

littleredcorvette · 06/12/2005 17:37

Thank you ladies for all your replies

I knew I could rely on mumsnet to understand how I feel and to give me some much needed support. I won't be putting myself in that situation again and next time we go on holiday it will just be the 3 of us!

Epiffany - the tinted prism lenses my ds wears are to make his head posture less pronounced and also to help with him being long sighted. Unfortunately they can't help with the nystagmus itself. Feel free to CAT me if you'd like more info.

OP posts:
ImdreadinganAUTIExmas · 06/12/2005 19:39

oh - I avoid anything like this now as I find I come home and cry for a week.

Do something nice for you to cheer yourself up.

misdee · 06/12/2005 19:41

i'm sorry LRC, i dont have any words for you, but couldnt leave this without saying anything.

oops · 06/12/2005 19:49

Message withdrawn

Epiffany · 06/12/2005 20:43

LRC thank you, I have CAT you

New posts on this thread. Refresh page