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Advice needed please.

11 replies

jambothesnowman · 05/12/2005 20:46

One of my boys is having a few problems that I need help with.

He is 23 months old(20 corrected) and 2nd twin. So different from his brother.

I had agood chat tonight with Loobie and also wanted advice from mnetters too.

Here goes.

My son although 3 months prem seemed to be doing ok, he came into this world with an apgar score of just 2 and was ventilated at birth. He turned out to be the strongest twin and also needed to have 2 blood transfusions. All was going well until Jan of this year.

He stopped breathing but thankfully ok, he is attending sick kids gastroenterology as he chokes on his food and always has.

His development is much slower than his twins- i hate to compare them but honestly he is way behind his brother. He is sooooo clumsy he can be walking around then bang he's on the floor, he has no instinct to out his hands out and stop himself and lies there for a wjile unless someone helps him up. It looks almost like he drags his left leg too. We are still awaiting our appt at the assesment centre with him.

His co-ordination is poor too and i find myself getting frustrated for him- yes i do shout too and i know i shouldnt i do try not too.

Any ideas what this could be?

Loobie may update you all on her perception of the wee man too = hopefully she will an yway as i aint good at writting down what i want to say

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jambothesnowman · 05/12/2005 21:25

bump

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RTKangaSantaMummy · 05/12/2005 21:34

He sounds like he may have DYSPRAXIA

My DS does too.

He is a surviving prem {27 weeks} twin who had corrected age 3 months apart

jenk1 · 05/12/2005 21:34

Hello, he sounds like my dd, she was born and had breathing difficulties which resulted in her being put into SCBU.

She has been diagnosed with hypotonia and development delay and she too drags her left leg behind her when she crawls, she cant yet walk she,s 20months old, she has trouble with eating and swallowing and turning over.

Hope you get some answers.

jambothesnowman · 05/12/2005 21:55

Thanks for your posting folks. I need to gain answers and need the docs to move their arses and give them to me.

Hopefully there will be more postings too

How are your twins RTK and how old now?

If he does have this can they tell this young?

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RTKangaSantaMummy · 05/12/2005 22:35

DT1 died aged 5.5 hours old

DT2 is now 10.5 years old and was DX about 2 years ago

I didn't know anything about DYSPRAXIA before DX

I have a feeling DX couldn't be made til about 5 years old, others here know more than me though

The difference between DT2 and his peers is becoming more obvious in physical ways just how they move etc.

DT2 has Hypermobility in his joints as well

jambothesnowman · 06/12/2005 08:56

sorry rtk didnt know about yourt child.

Thanks for all the input though maybe as you say someone will let me know

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jambothesnowman · 06/12/2005 12:52

anyone got anymore advice for me?

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anniebear · 06/12/2005 14:22

Sorry no advice, but my twin girls were 4 in August, onbe has SN and it is so hard trying not to compare them. How can you not when you can constantly see what they should be doing

No help sorry, just wanted you to know that I know exactly how it feels

jambothesnowman · 06/12/2005 14:30

oh anniebear it is hard not to compare them

I have found now when we go to hospital/doctor appt i dont take his twin now

There is only so much "well he is the 2nd twin" anyone can take I need them to see him as him and not a twin

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anniebear · 06/12/2005 14:38

yes, it is so hard. I have been on Mumsnet for a few years now and the others can tell you, I regularly post about being so upset at the differences in the girls.

I don't Take Ellies Twin Sister to appointments with me either.

When she was in hospital at 8 months old, (meningitis) she had been in for a while and Grace was with us in the room. They discovered Ellie had Hydrocephalus (excess fluid in her brain) and had to monitor the size of her head.

A foreign Dr came in, he was very hard to understand. He took one look at Graces head, looked at Ellies and was horrified!! He was really worried and chattering away and I suddenly clicked, he had looked at Graces little head, then at Ellies larger head and thought the fluid must have built up so much that it was affecting her head size.

When in fact, Ellies head has always been much bigger than Graces!!

Had to explain to him then he calmed down!!!!

Just because they were twins, he expected them to have the same size heads!

Sorry for waffling away!!!!

jambothesnowman · 06/12/2005 15:29

You are so right.

Sometimes doctors need to forget they are twins and see the childfor who they are

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