Please come and tell me more about reflex therapy.

[bedheadz]

I was reading a thread before that talked about Moro reflex, I feel really ignorant as I had never heard of it until reading that thread. I have done a bit of googling but you all seem like experts so what do you recommend in way of therapy.

Also in some of the articles it states that the moro reflex problems can be caused by something toxic "According to Patricia Rodier, in autistics it may have happened because of toxicity during the first 16 weeks in utero" www.fernridgepress.com/article-moro-reflex.html

I am trying not to be a conspiracy theorist but medication that I was prescribed for HG has since been issued with a black box warning as it can cause tardive dyskinesia. The only studies of which there are only are few state that there wasn't a rise in birth defects I cannot find a single study that examines the child in the years after the birth for long term affects.

What I have found is that the drug passes the placenta and the brain barrier.

When I google the drug alongside autism pdd nos adhd or sensory processing disorder I find lots of other parents who either took this drug or their child was prescribed for reflux.

I don't know what to think, I didn't research it BEFORE I took it and I feel so crap.

3 reasons I recommend AIT:

1. It has had fantastic results with both my kids. I've got the before and after audiograms and they are amazing.

1. It does an audiogram before and calibrates the program to your child ( I think)

1. It only takes 10 days. (I think this is because it starts with an audiogram of your child)

1. I think it has a better success rate - again because it starts with an audiogram.

But I really don't know much about it. We chose AIT for no reason, and I am very pleased with the results. I don't actually know what the diff between the 2 program's are.

But you could ask both an AIT therapist and a Johanson therapist whether they take an audiogram and then callibrate the music to your child.

Thanks both for your advice.

Good advice about the audio- gram. Did not see any equipment at the INPP/ Johansen therapists place.

So so wish I had known about AIT earlier. Now the INPP therapist says don't do anything more for the time being, it will overload the system.

Earliest opportunity I'll take this forward.

At some point want to do vision as well.

I did it whilst ds1 is having RRT

Been fine.

Think indigo did it at the same time as RRT too

No, DS and DD did it before. And then waited 3 months before starting RRT.

But I can't see there being a problem with doing both at the same time. But of course I'm no expert.

Oooops, sorry Indigo!

Our INPP practitioner didnt see it as an issue but then we did it without her knowledge and just told her about it afterwards!!!

IB, Was the 3 months wait deliberate?

Can any ENT place do an audiogram? IB I remember somewhere you had recommended frequencies we should cover.

IB, the rationale doing both together is then you don't know what to pull back if there is a overload. But the idea of zipping across and doing the AIT without anyone being any wiser is beginning to grow on me.

Becarooo,

Was the INPP therapist upset you did it simultaneously?

We opted for sound training with a practitioner who studied with Johansen. It took a long time. Two of mine actually have perfect pitch, we opted to live with the one who was all but complete, the other one took months. Our third took over a year, and a lot of tweaking. They have no auditory issues at all now.

Sorry pressed the wrong key and posted early...

Obviously we have no other experience, but if it took one child with perfect pitch months, and another much much longer, I wonder if the audiograms are the same for all the versions of sound training? The ones we did were testing at virtually soundless Db levels across the complete range. Even professional singers needed months to completely fill their gaps. So I still don't understand how a 10 day programme can be so powerful as to be the same. The child who we opted not to do the programme can discern changes in pitch to a single Hz, and was all but there.

It'd be helpful anyone knows the difference between the versions' audiograms.

Really scatty today...

Meant to say we did the auditory training together with the RRT. Again it took different lengths of time for each. From one to three years approximately. Some visual issues remain for one child, but these are now being looked at by a behavioural optometrist with some success.

RRT and sound training took up most of our lives over five years (because we could not logistically fit in more than two at a time), but definitely worth the effort. It was the typical spiral of progress and falling back too, but we'd run out of options, having exhausted various other therapies.

Here are DDs Audiograms

She def didn't end up with perfect hearing after 10 days - but a vast improvement.

Her left ear started with a range of 10 - -10, and finished with a range of 0 - 5.

It was enough to make a huge difference. But not perfect.

I'm really curious now. I wonder what the Johanson treatment is like :)

We're probably going to do FastForWard next. Will update you all how it goes....

sattva - How does Johansen decide if there is an issue?

What appeals about AIT is that they do an audiogram and begin from there.

But like sattva said, its odd that 1 program is for 10 days and other 9 months.

Not at all debbie

Obv glad I told her and she didnt work on the moro til for 8 weeks after he did it...she didnt say why but I assume its so the brain doesnt get overlaoded (?)

That's good. Don't know how our therapist will take esp since she is Johansen trained!

If only there was a way to make sure son definately needs it.

debbie - from what I remember, they were tested at normal and near zero Db levels across a wide range of frequencies. The results were a graph of attainment across the frequencies for each ear. Based on where the gaps were, the CD was made to address those areas. After a month, tests were repeated and showed up remaining areas, new CD made, etc etc until the graph of attainment was near enough ideal. So each CD was tailored to how they progressed. The initial session showed how much work was needed, ditto at each session because of the test results, and you can track the improvement. I suppose the proof of the pudding is if the 10-day programme veterans attain the model graph.

sattva
That's interesting & sounds good. Just to confirm, Johansen then begins with an audiogram?

sattva - Also need to compare the range each tests for. Make sure its not apples and oranges!

debbie I know what you mean.

Has your ds tried the Gibson test that indigo linked to a while ago? I ask as it really confirmed my (long!) suspicions that ds1 has major auditory processing difficulties and poor processing speed.

I cant do links (too dense for that!) but I am sure if you do a search you will find the link. Its only £19 to buy and not too stressful to do (online) so it might be good for you to do before spending what is a lot of money on another therapy??

x

debbie - I don't know what Johansen is, only that our therapist studied with Johansen. Every session started with a full diagnosis, took fair bit of time, and was thorough. Otherwise it's not possible to work out how to mix the CD to fix the gaps. I'd have thought one session will easily demonstrate how complete AIT actually is.

DH was despatched to an open evening in North London recently but we decided that it was not for us, and behavioural optometry is the last chain in the link for our last child. Despite horrendous times at primary school, they have all blossomed at secondary. Maybe it's just that they had time to develop, but it's not typical in our limited experience.

Who knows what we'd have chosen if that was an obvious option to us when we looked. We looked at INPP but decided the chap we went to covered that. Important thing is you're happy with what you;ve chosen. However if I thought AIT had left any major stone unturned, I'd be tempted to go for the one session to check.

I think its also really important to realise that any therapy's results will vary wildly according to each individual child....Ds1 had AIT and his noise sensitivity is so much better...its almost unbelievable. No more jumping out of his skin when a motorbike goes past for example!

For us, it was worth doing AIT to get that result for him. Others have had much greater change/improvement from AIT.

What is it you want to gain from doing a LP/AIT?? What do you hope the results will be?

Bec,

Very simply just want son out of SEN and be able to handle academics with ease and on his own with no SENCO breathing down his back.

I'll do what it takes to make it easier for my child.

Son has issues that could be due to RRT or hearing. I need to figure out ( don't ask me how!) and then proceed.

In that case (and I think you are speaking for a lot of us on here!!!) I would recommend the test that Indigo found...its called the gibson test and will give you a clear idea of your sons strengths and weaknesses...you may get some surprises though!!!

I have started Earobics since doing it with my son as it clearly shows he has real problems with prosessing speed and auditory processing (albeit it wasnt a shock IYSWIM....what was a shock was the high scores he got from some of the other tests!!)