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Here are some suggested organisations that offer expert advice on special needs.

EWO

9 replies

jenk1 · 28/11/2005 17:44

The EWO officer came to see us this afternoon, she was ok until it came to quoting the law to me re us taking DS out of school.

"The law in this country says that all children have to be educated and CAMHS had no right to tell you to take DS out of school"

I told her that i couldnt care less about academic things to do with ds when his health was the most important thing to us.

"Yes but soon he wont want to go back to school"

i said "he hasnt wanted to go to school for a long time so that means nothing to us"

She seemed more intent on blaming CAMHS for DS not being in school than DS problems that he,s been having.
Oh and another one " i believe DS has been getting support in class for a while now"
i said "Thats news to me-what support?"

"well he has a classroom assistant"

"well doesnt every class?"

Went on blaming CAMHS again saying if they had asked the school to refer DS for a statement this wouldnt have happened.

MY TRUMP CARD

I said "well they did in July/August because the headteacher told me she had received a letter from clinical psychology telling her in their opinion DS was AS/ASD and would require some help"
She went very quiet and said "i think a meeting is needed between you,school,CAMHS,Psychology,Parent Partnership and EWO.

BRING IT ON .....

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piffle · 28/11/2005 17:47

rumble.......
Ironic isn't it, left hadn does not know what the right is doing
It's in the news today about the system failing children by intervening too little too late...
Good luck, go... get... EM!

jenk1 · 28/11/2005 18:07

Oh and something else-"we need a note from the doctor to say that dd is depressed and school is making him like that" Huh?

So i took DS to the doctor this evening, when i told GP what school said he said "Piffle"

"So what the school are saying is that they dont believe what you are telling them, well i,d be very annoyed if i were you. In all my 20+ years i have never ever written a sick note for a child who has been seen by clinical psychology and is under the care of CAMHS-go and tell your headteacher she is a BUFFOON!, better still tell her to write to me and ill send her a letter all right!"

i feel like a ping pong ball being bounced back and forth with the medical and educational side each blaming each other

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piffle · 28/11/2005 18:24

we get the same thing, doctors deal with symptoms, OT,physios,ed psychs, portage,peripetetic senco and all the other early education folks deal with kids and their education.
So which one safeguards their egos, psyches and emotions -as we get told, hey you're the mother, YOU sort it out

jenk1 · 28/11/2005 21:34

Its me again-sorry, one of the main arguments that ds school have is that DS doesnt tell them when someone has upset him or if something is bothering him.

Despite me telling them that he doesnt know how to express himself it falls on deaf ears.

I saw some cards somewhere for ASD kids at school saying, "i feel angry" " i hear a bad noise" etc but DS is very High functioning and i dont want to feel that i am making his autism seem more severe than what it is.

Oh i dont know, Does anyone have these at school with their AS child?

DS is going to have to go back in school part time in order for us to get him statemented and this is his main problem-not communicating.

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Davros · 29/11/2005 09:23

By law he has to be in education, not in school. That's not the same thing. Anyway, they do sound like a lot of buffoons apart from the GP. And if the EWO woman, or whatever she is, has a problem she shouldn't be putting it all at your door and expecting you to sort it all out.

baka · 29/11/2005 10:29

Have a look at "home educating our autistic spectrum children- paths are made for walking" lots of individual chapters- mainly about children with AS. Some of the children were hoe edded, some tried alternative schools, flexi time etc. Also a chapter on educational law.

jenk1 · 29/11/2005 11:04

yes i will have a look at that, thanks baka.

I think we are going to do flexi-time, he will be at home with me in the mornings and he will go into school in the afternoons because at his school there is no afternoon play so that would be ideal for him as that is where the main problems are.

Peachy-does Sam have cards to help him tell the teacher when everything is getting too much for him because i am thinking of getting some for my ds, he says that sometimes in class the kids will poke him or pull his hair because he cries out but he doesnt know how to tell the teacher.

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JayzMummysATurkeyStuffer · 29/11/2005 13:22

Jenk, We use mood cards for J. Great for troublesome moments when he cant find the right words to explain how he is feeling....only prob we have is that he doesnt quite grasp the concepts of feelings emotions so he often gets confused and then gets in atizz about finding the right card!!!

Im sure they would be great for your son though.
We made ours by using clip art and the trusty old laminator. I bought some book rings and made J his own "I feel like" book. Maybe you could sit together and let him choose the piccies he wants to use.

jenk1 · 29/11/2005 13:29

Thanks JM or should i say JMATS?!!!!

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