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School want to punish ds (PDA) next week for behaviour this week

29 replies

Lambskin · 15/07/2011 17:11

Ds2 is 6, in Y1 and has, we believe, Pathological Demand Avoidance Syndrome. This means that he can be a Jekyll and Hyde character; lovely, funny, charming and loving one minute, then the next will refuse to do anything asked of him no matter how simple, shout, run around, be violent, act erratically and basically be a whirling dervish. He also lives in a fantasy world of his own and has sensory issues and extreme anxiety.

All of this is known by the school, we have fortnightly meetings (Head, class teacher and myself) and I thought they understood.

I have been informed by his teacher that ds will not be allowed to go on the planned Teddy Bears' Picnic next week because his behaviour has been bad this week - arguing with staff, refusing to do what he is told, being excitable etc. None of which is new or surprising.

I am fuming! All of the 'professionals' involved with ds - EP, CAMHS, Specialist Teacher have all said again and again that punishments have to be immediate and the school just seem intent on disregarding everything they're told by them and by me.

They can't do this can they? I already go on school trips so I would go on this too if it was a case of Health and Safety, but his teacher has very firmly said that no it is a sanction but that she will mention my displeasure(!) to the Head.

I know that this isn't a big deal in the grand scheme and I've certainly fought worse with them, I thought that they were finally understanding but now I think they just want him to go away. Sad

OP posts:
coff33pot · 18/07/2011 16:10

How did it go with the de-reg letter today? Hope it all went smoothly for you and good luck in the HE Smile

Lambskin · 18/07/2011 16:57

Thank you coff33pot it went well.

Ds and I went in at the normal start time for school and first of all went to his classroom to explain to his teacher (kept it light and friendly), pick up his stuff and so that he could say goodbye to his classmates. The TAs were lovely and gave him a hug, which he accepted, and the teacher looked uncomfortable. She kept saying she was sorry. I explained briefly to the class that he would be learning at home with me from now on.

We then went and gave the letter to the receptionist who has a soft spot for ds and kept asking if I was ok and if I'd cope! I didn't see the Head and he hasn't phoned yet either.

All through this ds was shouting to everyone and anyone 'I'm leaving school' over and over.

We've had a lovely day and he's a changed boy already. As we were leaving the school for the last time he said, 'I won't have any nightmares now will I mummy?'

We'll keep in touch with his friends and can meet them on nice days at the park that's between our house and the school. We've thought about some fun projects and days out so I really think we'll be ok. Smile

OP posts:
drivemecrazy63 · 18/07/2011 17:56

do you know thats so mean that id possibley as he had picked a teddy and everything keep him home and take him on one yourself anyway.... hope the HE goes well for you, there will be other options available to you in future once dx... not that you should have to wait till then but the red tape prevents otherwise

coff33pot · 18/07/2011 19:46

Aww bless him! Well from what he said on the way home I think you have made the right choice Smile If he was having nightmares about school then there was obviously a lot of issues upsetting him there. And its a bit late for the mean teacher to keep saying sorry and very ignorant of the Head not acknowledging your letter but hey ho job done! Grin

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