Could this have been a seizure? And other epilepsy questions

[used2bthin]

DD had an abnormal eeg result suggesting benign rolandic epilepsy. She has had a few odd turns including one where she dropped to the floor suddenly.

Anyway the neurologist can't see us till august and wants an MRI which I am told is not always the case with benign rolandic epilepsy so I am worried they think something else is going on (what though?). She has specific language impairment with associated learning difficulties so I guess its because of that possibly.

Anyway so now I am on alert all the time for anything that looks seizure like especially at night as the majorityof strange things happening have been at night. So two nights ago she fell out of bed and I ran up to see what was happening (she has spates of falling out of bed and then I often find her half way across the floor or she sleepwalks. This time she had fallen in a weird position and her eyes were half open which again is fairly usual for her. Her left arm was tensing/jerking a bit and she was opeing and shutting her mouth.

Last night she was up late and cried about going to bed. It was a forced cry, really deep breathes to force herself iyswim. Then suddenly she started making burping/choking noises. I ran upstairs and her arms were tensing and going up and down she had thrown er head back and seemed to be laughing and crying at the same time. The laughter was seriously weird not her usual laugh completely manic and she would hold her breath in between. She calmed sdown in response to me hugging her which makes me think maybe she was panicking rather than fitting? Laughing though was odd.

[youarekidding]

Hello, hows DD?

As promised I have come back after our talk by epilepsy nurse.

We watched lots of clips of different seizures and some clips that looked like seizures but were not.

She said the most important thing is the recording. Note what was happening before, what the characteristics of the suspected seizure are and how the child is/ what they do after. By characteristics she said for example not to write 'absence' if that waht we suspect but rather 'child was drinking their drink, they dropped the cup and their head went up to the right, the child was unresponsive even when poked. The child then looked at me and looked at the cup and asked for another drink.

There are apparently many different non epileptic episode mistaken for epilepsy. (night terrors, cataplexy, the pain one which I can't remember the name of and hyperventilating which I notice many posters have started above)

She said there are 56 epilepsy syndromes and over 40 different type of seizure . The recording and films that help the diagnosis.

She did say some seizures look and sound like the child is choaking - a bit like what you have described. Obviously I can't say it's seizure but i may be worth while filming this as could be a clue for the Pead cons.

HTH and ask if you have any more questions - It may be about something she mentioned as I've only given you the ball park.