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So come and educate me are these things normal for an AS child?

38 replies

TheLadyEvenstar · 06/07/2011 21:37

DS1 has always been shall we say "different"

First sentence at 10m - witnessed not just by me.
Reading by 2.4yrs
Spelling complex words by 3yrs.

You could take him anywhere and he would just sit - you would have been excused if you were with me and not realised he was there tbh.

Slept 2 hours a night from 4yrs - 8yrs old then progressed to approx 4-6hrs a night up to now and he is soon 13.

Went through a year of eating plain pasta not even cheese on it
then the following year went to dry bread.

Went from being dry at day and night to urinating in corners at about 5yrs old.

Never had a friend as such.

Eating sweetcorn until the cows come home and suddenly stopped eating it.

Very sensitive to noise, crowds, lights, touch.

Still struggles with laces and buttons.

DETESTS being made to change his clothes.
Almost impossible to get him to shower - although that could be teen years setting in.

I think thats it for now, I just need to know what is normal development for a 12yr old and what is due to him being AS?

Hope you don't mind me asking.

OP posts:
TheLadyEvenstar · 07/07/2011 15:43

I am going to let you into a secret

I am sat here sighing with relief!!

I spent so long with drs telling me I was over reacting etc that I wondered if had actually imagined these things. But putting them in black and white and seeing others have/are experiencing the same makes me realise I have not imagined it.

Now I guess the next part is to tackle the school who keep repeating to me "But he is so intelligent" arghhhhhhhhhhh

OP posts:
purplepidjin · 07/07/2011 15:50

FFS ASPERGER SYNDROME DOES NOT EQUAL STUPID

In fact the main criteria for a dx of AS over HFA is that the person is of average or above average intelligence.

Patterns of letters and numbers are easily controlled with strict rules governing their behaviour. People aren't. Asperger Syndrome means struggles with the people bit of life!! A bit of an oversimplification, but you know what i mean!

TheLadyEvenstar · 07/07/2011 15:54

Purple, yes I know what you mean.

The thing is he is great with words, letters and numbers combined BUT give him a series of numbers and ask him to work the pattern out - he freezes, give him the same but put letters there as well as numbers and he walks through the pattern iyswim?

OP posts:
purplepidjin · 07/07/2011 15:59

He has learned a skill but has trouble applying it in other situations? yep, ticks the AS box.

I've calmed down now, sorry. I've met too many teachers who think they're experts because they once taught a boy whose brother's best friend's cousin was on the spectrum...

TheLadyEvenstar · 07/07/2011 16:30

Purple, I wish you lived close to me and could come to the meeting I have next Tuesday.

OP posts:
purplepidjin · 07/07/2011 16:54

How close are you to the New Forest?

TheLadyEvenstar · 07/07/2011 17:18

London

OP posts:
purplepidjin · 07/07/2011 23:27

Grr, too far Sad

colditz · 07/07/2011 23:36

"But he is so intelligent" arghhhhhhhhhhh

Do you ever think "Yes, I know, it's a pity you're not!"

As an aside, I read at 2.9, slept 5 hours a night, ate nothing but ketchup sandwiches for 2 years, refused to have my hair brushed or bathe or change my clothes but my inate vanity sorted most of it out before I was 12. I still think that these days all three of us (me and siblings) would have been diagnosed as Aspergers.

Now, Ds1 does have ASD, but also ADHD so not so much of the sitting down - although was a docile and[placid baby/toddler. He rants now, but he doesn't really argue, not like Ds2 does.

TheLadyEvenstar · 08/07/2011 02:23

Colditz, yes I do look at them with utter, well disgust that they cannot understand intelligence is actually a reason for him to NOT be AS.

I am trying to write a list of what I would like to see in place for him in preperation for my meeting on tuesday @ 8.15 ...who has a meeting at that time with parents?

5 heads I am meeting with head of learning, head of behaviour, head of senco, head of year and one other head who I cannot remember.

Why on earth am I having to meet with them all in one go to explain AS to them - oh yes because the head of HOUSE not year my mistake says "You explain it so clearly and it will be easier than me trying to pass the information along" so i guess in other words I am doing their fucking job for them.

OP posts:
purplepidjin · 08/07/2011 09:06

www.oaasis.co.uk/

purplepidjin · 08/07/2011 09:07

www.oaasis.co.uk/ even!

I wouldn't normally touch the C word with a bargepole bastards to work for , but the free info is pretty nifty Wink

colditz · 08/07/2011 10:25

TLE- get used to it. Sorry. That's the way it's going to be. I found myself having to exlain to Ds1's class teacher last year that lying to the children and telling them they were going 'on a trip to Spain' was likely to cause more than a little upset and anxiety, and then anger at being lied to. He's not the only ASD child in the school, I could name 3 others, one in his class, so why she hadn't got a grip on this is beyond me. This year has been 10000000 times better. His teacher is unpopular with other parents because she is no frills. Ds1 loves her for saying "Sit Down" instead of saying "I don't really want everyone to be walking round and round, do I?" (Because his response to that is "I don't know - do you?")

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