Title says it all really. As most of you know ds1 is gluten free, but eats well - some would say like a horse, has gf oats with fruit and full fat milk every day for breakfast, takes fruit for his playtime snack, has two gf sandwiches for lunch, plus a gf cake or biscuit of some sort and a pot or piece of fruit, another snack like toast and jam, scone, a yoghurt, another gf treat of some sort after school then a huge evening meal of things like, gf pasta with home made sauce containing a stack of veggies and grated cheese on top, macaroni cheese, veg risotto, fajitas, mediterranean bake with quorn, home made soups and stews with or without lentils, spanish omelette with lots of veg and a salad, occasionally oven chips and mushroom burgers or home made pizza etc etc. At the weekends he eats similarly, but has an additional tofu smoothie for breakfast. The dietician he was under was very impressed with his diet and felt it didn't need addressing.
He absolutely will not eat potatoes, peas, sweetcorn or chocolate, but other than that is not that fussy.
So why is he losing weight? He is honestly all bones now. Weighed him this morning and he's 3lbs down since the dietician weighed him last September and I know the Paed who weighed him in January said he'd gained since the September weigh-in. He should have gained 8lbs to keep him between the 9th and 25th centiles, but he's dropped down to the 4th and still appears to be losing. You can count his ribs, his legs are like sticks and when he bends forwards you can clearly see his spine through his t-shirt.
He was 'glutened' last Friday when his teachers failed to stop him from sampling the food another class had cooked and came up with red angry sores around his mouth within an hour of eating them, then he was moody, emotional and exhausted all weekend and looked a really odd colour with purple bags under his eyes.
I hesitated to send him to school on Monday, but he wanted to go and seemed a little better so I did, but we both lived to regret it. He was so exhausted and told me that evening that at one point he was wobbly and dizzy and felt like his legs might give out from under him. Then he ended up getting into a fight with two boys from a different year, because they were killing bugs and he sees himself as a bug protector extrordinaire. He was already feeling really rough, so his fuse was shorter than ususal and for the first time ever he lost his temper and punched them, hard enough to leave a mark - cue me being called into school at pick up time.
I have kept him off today and don't intend to send him back in until after the strike, which he would have had off anyway. He wants to go in on Friday because they're having a special day to do with one of their recent study projects. At lunch time I forgot I'd made his lunch last night and put it in the fridge, so made him another and he ate both! That's four sandwiches, a coconut macaroon, a pot of strawberries and a pear! I don't know where he puts it all because he's tiny.
Its all so non-specific, I know I won't get him into the GPs as he's not 'acute' enough to pass triage and appointments are running with a two week wait at the moment - I'm going in myself to discuss my neuro problems this Thursday and it was two weeks ago that I ended up in A&E. I will book him one, going to call after typing this, but what do I do with him in the meantime - I'm not sure he can cope with all the end of term mayhem, but he really wants to go, not least of all to spend time with his best friend before the holidays start.
Sorry this is so long, I am just worrying thinking aloud really.
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Worried about ds1's - losing weight and lethargic
33 replies
moosemama · 28/06/2011 17:20
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