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How do you other mums keep going? How do you 'come to terms' with dx?

26 replies

dietstartstmoz · 24/06/2011 14:11

I've been posting on and off on here for about 9 months now, since concenrs were first raised about DS2 and ASD. I have had some great advice on here. We have had a busy 9 months, Ds was dx with ASD in March and he's getting support from different agencies, and now a few hhrs 1-2-1 a week in a private nursery. He will be starting mainstream school in sept, the school appear to be very supportive and we are going through the statementing process. Lots of agencies are involved in the transition to school and he gets some SALT, although this is more monitoring him and giving nursery some targets to work on with him - all good and positive
But I am still feeling very upset and heartbroken that my baby has ASD. I know this is normal and i'm sure everyone goes through this, but when does it ever start to get easier? We have told people and I am good at the 'brave face' thing but I keep crying at home, and just feel very miserable. I struggle to see anything positive and am terrified about the future. I have no interest whatsoever in going to work ( a job I usually love). I have thought about going to the dr's but don't know if I want to take any pills, and short of finding a cure for autism I don't think anything will make me feel more positive. he is such a lovely boy but I hate the feeling of being helpless. You think if you love your kids enough it will be OK but then you get your dx and you realise your love is not enough.
Just wondered how you keep going everyday?

OP posts:
unpa1dcar3r · 25/06/2011 10:43

Hi Diet
Your post struck a chord. took me back to allthose years ago getting elder DS diagnosed and then having to get my baby (10 months at the time) diagnosed and then to get my girls tested for carrier status.
took about 2 yrs all told and I don't think my feet touched the floor with organising everything but also trying to deal with my grief, shock, anguish...
Think I was on auto pilot all that time and with no sleep!

But things have improved greatly, you do...I won't say get over it, cos that never happens in my experience...but you do learn to live with it and adjust your life accordingly
Always remember that first and most importantly he is just your little boy, that comes first. His personality, everything. He just happens to have a little extra about him.
A lot of it will be good. A lot will be bad too I won't lie but you'll learn as you go and he will enhance your life in ways you never even thought of. You will be a stronger and more patient, tolerant and understanding person and he will bring all these wonderful traits out in your own personality which you might never have discovered if not for him and his brilliant-ness.
I know I have and I wouldn't change my boys for the world, they're amazing.

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