children in need just made me cry

[jenk1]

i was just on the web page for CIN.

It said there are more than 17,000 families in the uk with more than 1 disabled child and i just broke down.

I remember watching this last year and thinking-hoe do they cope?

This time last year we were having problems with ds but not major ones and dd was ok and now in the space of 6 months ds has been dx,d with ASD, myself with AS and dd with GDD,hypotonia,hypermobility.

Im not feeling sorry for myself i just feel SO SO SAD.

I feel sad for the plans we made that we can no longer do etc and i feel really sad for DH.

Malory i LOVE your name

Hi Jenk1. I have a child with severe autism I don't post much on mumsnet cos I use ASD specific forums but your post struck a chord. we only have 1 child with a disability but I too experience times when I just feel SO sad about the plans and dreams we have had to give up on. I think its ok to have times when you feel sorry for yourself plus it sounds as if your life has been turned upside down in the last 6 months so its only natural. Take care

Thanks Uniqorn,which forums do you use to do with autism if you dont mind me asking

My child is suspected of having autism too, and it is very upsetting but we love and nurture him the best we possibly can.

17,000 families!! What saddens me is how unlikely is it that all these children come from a loviing home????

Aspergers and ASD UK Online Forum. There's loads of easy to find advice and info on every subject benefits, education, meds etc etc Have a different name on there though

thanks

Hi Jenk1, I haven't been around much recently so I am not up to date on everyone's situation. I can't possibly appreciate your emotions ATM. yes, I did have a shock when Amelia was born, but I have never know her any different, she is my little girl and having DS is just a part of her. I "expected" problems I suppose, but from one day to the next you just don't know what problems are going to arise.

I can understand how upsetting you find CIN, it is upsetting to anyone with a heart. But this time you will look at it from a different perspective. I know I do, I can honestly say I watch and consider my self almost lucky, Amelia's disabilty does not cause her pain and up to now we have been very lucky with health issues. You will get stronger...but that's not saying that you shouldn't sit down and watch with a large box of tissues and cry your eyes out.

{{{{{{{{{{{{{hugs}}}}}}}}}} Dingle.xx

u have hit the nail on the head dingle, im looking at CIN from a different perspective this year and thats whats so upsetting

We were the fortunate recipients of a grant / bursary this year, not from CIN but another charity. Going from the position of paid fundraiser a few years ago to recipient has been a huge shock, but the support has been so incedibly important. We are still very much in battle with the school etc, but knowing we have the support of BIBIC and the lovely gentleman who came to assess us and then chose to drive to London to support our case rather than write a letter.... faith in humanity has been hugely boosted! There are a lot of plans that can't happen, for me the biggest thing is how much I'd like to give Sam a hug without him pulling away from the neck down. But in return, people have been so generous. For every relation / friend we have lost to Sam's AS (my best mate and my MIL mainly) we have gained ten and my oldest friend and I have got so much closer as her son has dyslexia and behavioural issues also. CIN boosts mys spirits just by existing.

I think there is always someone worse off than ourselves and that is how i cope with having two children with disabilties. CIN shows some of them and how we should count our blessings for what we have. It always makes me cry when the show kids who have such problems.

17,000!!! Wow, I feel incredibly humbled by that statistic.

My ds's bi-weekly autistic group was featured on CIN two years ago and there was my ds doing a roly-poly and ended up with a great big full picture smile to the camera - it was lovely.

I'll be joining you tonight Jenk with a big box of tissues. x

I am one of those 17,000. I have 2 kids with Cerebral palsy, we cope because we have to

Know exactly wot you mean Jenk, I watch from a different perspective now also....and i'm 'lucky' as i only have one child with cerebral palsy.

I was suprised this year as I cried also!

The bits I watched seemed to have SN children on and was showing them with their Sister.

That really got to me