Hypotonia, anyone else have a child with it?

[mummyto3]

Hi my almost 2 year old has been diagnosed with hypotonia and is now having physio to help. they told me it will be years before she walks but i wondered when did your child walk?

my dd2 has hypotonia, just found out last week, she is 3, but strnagly she walked at 10months old, she met her physcial milestones early. she is just very wobbly and slower at things. she also has hypermobility and spacial awareness isnt too great (not safe on stairs or walking really). we have just started physio to help strengthen her muscles and hopefully will see some improvement sometime soon.

Jenk1 dd also diagnosed recently.

hello my dd was diagnosed last week same as misdee,s dd.

She is 19months old and cant yet walk, has been late in reaching her milestones and has GDD, her development is that of an 11month old baby,they havent told me when she,ll walk, Butty,s Ds also has this and he is older so she,ll know more than me she usually comes on here later.

Aurelia was a preemie (6 weeks early) and had other problems. She is two next month and can't crawl, stand or pull herself up at all. She has hyperextensive joints and a deformetity in her ankles I was shocked to get this diagnosis as she is my 2nd child to have problems, my eldest has dyspraxia/aspergers. I am still in shock. do you feel like this too?

She is the size of a 10 month old as well.

not in shock, i have known since she was a baby that something wasnt right. feel rtelieved that someone finally listened. when she was 16months old her heart was checked as they found a murmur, due to her dads heart problems that scared me more. this i can cope with. hope that makes sense.

poor you and your baby. heart murmurs are so worring. Aurelia was born with one but grew out of it. I just feel as she was so ill when she was born and then i thought she was ok , it has really blindsided me.

Hi mummyto3,

Dylan has severe hypotonia and has the 2 problems you mentioned regarding ankles and hyperextention.

Dylan started crawling at 10 months, well if you could call it crawling, he puuled to stand at just over 2 and started cruising shortly afterwards.

Over the last 6 months he is managing to take 6 independant steps but yesterday he managed 15!!!!!!

I was told that dylan would probably not walk and if he did it would be much later on.

He is almost 3 and is definately proving them wrong although he does really struggle with his balence and i am fully aware that he more than likely need support with walking for the rest of his life.

The key is not to push your child as they rebel against it, do the physio exercises enquire about piedro boots etc... your DD will get their eventually and when they do it is wonderful!!!!!

if you need to ask anything more then feel free to cat me.

Butty.xxx

we are being measured for piedro boots next week!
it is nice to know i'm not alone.

does he have any other problems like with feeding himself or being able to turn over in bed?

Hi,

yes, dylan cant manage a spoon or fork properly due to his poor grasp, although it doesnt stop him using his hands, even with cottage pie etc......

Regards to sleeping, dylan sleeps with his hands flapped out behind his back and his bum in the air!!!!!!!

I dont think he has problems rolling over anymore but he used to as he was 10 months old before he learnt to roll over, but i still check him at night as he does get himself tangled up!!!!!!

Butty.xxx

Aurelia can't roll over easily. she has only ever rolled twice in her entire life. she screams if you put her on her tummy. She can pick up a spoon and feed herself but after a few mouthfuls she seems to run out of steam and i have to do it or she will use her fingers.

Have you talked to doctor about her screaming when on tummy???
I never had that problem with dylan as he was quite happy to lie on his back or front and just chill out as he does oh so very well!!!!!!

Dylan wont let me feed him as very stubborn and independant so teatime is usally the messiest time of the day, i can spend days trying to get the dried up food i missed outta the carpet!!!!!

Do you have any support regarding her hypotonia, have you been referred to any specialists or been put in touch with any play groups etc....???

If you have any questions then ask the pros as they should be advising you on certain aspects and if they are not helpful, then you know that you have support from many others on here.

Butty.xxx

never thought to mention it!
we have a physio and we are being referred to salt ut not seeing dr till april
can i get info on playgroups from hv?

Yes you can or should be able to.

Do you attend the local CDC for any appointments??

Dylans first playgroup was there on a monday afternoon and they have nursey workers from SS.

It was very good for both me and dylan as i met other parents and dylan had a wale of a time!!!!!

Butty.xxx

cdc?

Sorry, it means child development centre.

Butty.xxx

My daughter also has hypotonia (but part of her overall condition). She didn't sit up unaided until she was over 1 year, then bum shuffled and eventually walked at 18 months. She also has pronated ankles (they roll in slightly) but she just has supports in her shoes from the orthotist. She also dribbles a bit (not nearly as much as she used to) and obviously this was also due to her low muscle tone.

yes i go to the cdc twice a week for physio.

hi Bumblelion. can i ask what her condition is?

I'm sorry to pry but i am concerned the hypotonia is a sympton of some underlying illness.

My daughter has a genetic condition (although me and her father are not "carriers", it is just a one off) called Sotos Syndrome which causes overgrowth (she has just turned 4 and wears either 4-5 or 5-6 size clothes - she has long limbs and wears a size 12 shoe - the same size as her brother who is nearly 9!) and delayed development. She will hit puberty at about the age of 9 (apparently you stop growing two years after you start your periods) and will be adult height at 11 years old (estimated at 5'11") which might not sound too tall but I am only 5'4" and her father is about 5'8". It will be strange having an 11 year old who is taller than me. Growth should start slowing down at the age of 5 and, hopefully, development will kick in.

It may well be, but look at my situation and many others on here, we dont have any answers and nor may we ever.
Dont worry yourself about it as it gets you no where. I did and look at me now!!!!

Butty.xxx

Thanks Bumblelion.
Aurelia is small for her age so thats one less thing it could be.
I hate not having answers. It took ages to get my eldest diagonosed with dypraxia/aspergers. I worried myself silly then too.

my daughter used to scream if put on her front as well mummyto3, i have told the paed and hv but they didnt say anything, she is very small for her age and is still only in age 9-12months clothes,seems like our dd,s have a lot in common

Hey Jenk,
there you are!!!!!!!!

Have you seen the latest thread????

If so, what do you think????

Butty.xxx

sounds like it Jenk1.
it is hard not to worry about it.