Botox & CP

[Davros]

Expect all you CP mums have heard about this and may heave a sigh, but just read a small item in the latest issue of Good Housekeeping (November, out today). Page 130 in the Family Health section.

mieow knows all about it. her ds has been having botox treatment for about 18months now. he was part of the study into it.

Thanks Davros. I've been doing extensive research into it for when ds2 is ready to have it (thanks again aloha btw). His physio and his neuro think he may benefit from it when he is walking.

Actually Connor has been having Botox for 2 years. He recently had another lot done and I can't praise it enough. It works

Mieow - sounds a stupid question but what does it actually do? My ds can walk, how does it help them? It hasn't been suggested to us but maybe i should ask - we see our paed next week. What age should it start? thanks

Connor can walk too, but before he had the Botox he would drag his toes. His hamstrings are very tight and the Botox relaxes the muscles. As you will all know, CP causes the messages to come down wrong to the nerves in the legs, arms etc, the Botox kills the nerves for a while (don't worry, the nerves regentarate ) And in that time you can stretch easier and some children manage to hold onto some of the benifit. Connor only needed his left leg injected this time as his right leg has held onto the benifits from the previous injections and is nearly back to normal. Connor has always been more affected in his left side, before you all get excited!!
I had to ask to get referred too, but he has the Botox at GOS and he has just had his third lot

He is 3 when he that his first lot