Im sorry this is a moan thread, but i realy feel so alone right now.
i have had a rough time of things with DS from the day of conception. Not half as bad as some parents i know, and im thankful for that, but theres always "something" going on.
i had a bad pregnancy, and was ended up being induced 4 weeks early, which i blame myself for and "if i hadnt.....maybee all this wouldnt be happeneing...."
as soon as DS was born i knew there was something wrong, but everyone said he was fine.
we had problems feeding (which turned out to be my fault since i dont produce milk), he ended up on a billy bed for jaundace, and then back again for dehydration (due to lack of milk). Then started suffering chronic reflux so we started on medication.
He was a realy good baby, hardly cried, hardly moved, could be left on the floor on a baby mat while i cleaned and washed up etc, wouldnt cry in the morning to get up, wouldnt bother about having to go to bed. This should have been a sign something wasnt right, but i was suffering PND and i just thought i was lucky.
He didnt roll over till 9 months, sit till 10 months, and walked at 16ish months.
at his 8 month check i mentioned about his eyes wobbling when he looked sideways.......by 15 months we had a DX of nystagmus.
at 2 i was concerned about his hearing and at 3 he had his first lot of grommets.
from then on, whenever i mentioned any concerns about his development/learning, i was always dismissed by my friends/family/proffesionals as "but you have to remember he hasnt had the best start with his vision and hearing problems!"
he doesnt need glasses for his nystagmus, he has 20/20 vision, he just tires easier having to controll his wobble. its stressfull for him, not particularly anything to do with not being able to see.....if you get me.
anyway, last feb i moving DS school (he was year one then). lots of reasons, but i wasnt happy with the school at all.
He settled in well, and they have done wonders with him. He is on SA+, has an IEP, a member of the sensory services team sees him in school regularly and gives the school a report to ensure theyre doing everything for him visually, but about the same time last year, i started the process of getting the Pead involved with him.
It was based at the time on DS behaviours in school, and while that has since improved, it has made me look again at all the things i had seen before but pushed aside becuase no-one else was listening.
I firmly believe he has HFA/ASD.
I know that he is mild, but i have been pushing for over a year becuase i know that a formal DX opens doors.
He is behind in school, and again this is being bushed under the carpet with "well im sure he will catch up in his own time" and "boys are always slower" but i dont want this to snowball....if hes a year and half behind now....then by the time hes in year three it isnt going to get any better, its just going to get bigger and bigger....school are giving him 5 sessions a week extra...thats 1Xliteracy and 2Xnumeracy (or vica versa) and 2XTA led sessions reading.
i dont feel i can talk to the SENCO at school, and although i love his current teacher, sometimes i can feel she is dismissing this too....she finds him easy to handle, which again is GREAT! but this can giver her a false sence of things, and when he moves onto the next teacher, things could go downhill very easily.
sorry that this is so long winded and boring, but i think everyone round me is fed up of me....i cant talk to anyone without getting a look of "here we go again". I dont want to be that person who everyone thinks is wanting to be the worst off coz i know im not by any meens!