Tourette's Information for schools

[Oakmaiden]

Does anyone know anywhere on the internet that I can download an information sheet and educational strategies about Tourette's Syndrome, for my son's school? Suitable for primary school level (I have found one such sheet, but really it is more aimed at secondary level teachers). i ask because i really don't think they get it - or are not passing the information on to their auxilary type staff. My son had to stand next to the lunchtime supervisor all through the lunch playtime yesterday, because he had been humming during the mealtime. Well yes, of course he had. He has Tourette's and humming is one of his "things" - he finds it really hard to supress. He shouldn't be being punished for it. So I want to provide them with some information. Any ideas, anyone?

Oakmaiden have you posted this on the education thread too? Because I know their are alot of education people use this site I personally have no idea

oh for f sake. This is when I think I should renew my education otherwise membership! I would be interested as well as ds1 is pretty tourette'sy at times. (humming is one of his things as well- especially when stressed- he starts humming the cranberries manically)

Grrrr on your behalf.

This is probably what you've already found, but just in case:
here
or here looks good, but doesn't seem to have a scroll bar that allows you to access anything!

Have you approached the health specialists who (presumably) offer you and your son help outside of school ? I would think that they get approached for things like this quite a lot and would have some sort of factual information in written form.

That 2nd link by Tamum, seems really great. It did have a scroll bar for me and I could open the links.

tamum - thanks. That second link was the one I already have grabbed some info from, but as I said a lot of it isn't really relevant to a 5 year old!

Hadn't thought of actually approaching a health professional for info sheets. Just goes to show how useful I have found them in the past....

thanks all - and Jimjams - I know I still am unsure that school was the right thing - although I woukld say in general I seem to have picked a very helpful and responsive school, and he IS happy there at the moment. This could just be a blip due to them not passing info on to the lunchtime staff.

Ah, sorry, just goes to show how useful a scrollbar would have been! What about the Tourette's associations? Again, you'd think this would be something that would come up time and time again, wouldn't you? I forgot to say how utterly appalling that was about your son

Oakmaiden - we have students with tourettes in our school and the SEN did up a sheet outlining general information and then included detailed information for particular children - so ie your son would have had infromation about his particular traits iyswim. That was given to ALL staff. I would speak to your schools SENCO and ask that the information be distributed to all staff.

Oakmaiden, I'm assuming that the school doesn't have anything on file, is that the case? The SEN department should have this sort of thing on file to give to the members of staff that work with your ds, we do at our secondary school. I was given lots of info an ASD, Tourettes and ADHD when I started work. We are also give updates on a wide range of condtions that children in the school have at dailt briefings so that we have a better idea of how to cope if anything happens.

We have a boy who has tourettes at the school I teach at. He is integrated reasonably well into the school but he also spends time in the SEN department working 1 to 1. He also uses the 'Sucessmaker' teaching programme, in the quiet of the SEN department, which I think helps to remove some of his stress, and therfore the severity of his tourettes. Over all he seems to be doing well in mainstream but he has 1 to 1 for a fair bit of the day, which helps his integration a lot.

Try www.ninds.nih.gov/health_and_medical/pubs/tourette_syndrome.htm

For a fact sheet for adults

And

pub51.ezboard.com/ftourettesyndromesupportuk36971frm0.showMessage?topicID=71.topic

From a chat room discussion on how to explain tourettes for kids.

HTH