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Ds1(7) , AS (ish), given diagnosis. Then diagnosis is basically, withdrawn.

51 replies

Oblomov · 24/05/2011 12:41

Ds1, bright, minor issues, assessed twice by a Paed and a Clinical Pychologist. Both said Theory of mind = severe. And empathy = severe. But when doing AS teat, not enough boxes ticked to give diagnosis.no surprsie, because even I wasn't sure.

So CAMHS does DISCO assessment.
She says in her ASD Assessemnt report :

"DISCO, fullfils diagnosis of childhood autism.
But school , and our vist (they visited and watched him for 15 mins in classroom, then 15 minutes in playground, and he played very nicely, with 2 of his friends), = at odds with this finding. so now I must speak to dh"

"Mum can't rememeber some development questions. so maybe stress ? maybe mum had attachement problem, due to her health, plus child is rigid, so this could explain it."

I'm like, "you what".
You do the test, he gets enough to warrant diagnosis. But school disagree. Then our own 30 minute observation, makes our question this.

So now we are basically questioning mums judgemment. maybe it is actually
attachment and bad parenting after all.

Dh has made an appointment to see her.

I had a sob. No one beleives me. Its not as though I would make it all up.

OP posts:
StarlightMcKenzie · 26/05/2011 19:13

Oops, that will teach me for not reading the thread.

Personally I would go for Autistic Spectrum Disorder as then they can't use Aspergers to justify not giving you support (some LA agencies write policies deliberately excluding AS).

The thing is, AS IS an ASD so you can have ASD written down but tell everyone AS iyswim.

Also, in a couple of years AS is being removed from being an option. Everyone will have ASD so you might want to consider the idea of having an 'out of date' dx. iyswim.

Well done btw, for keeping on top of all this. What a nightmare for you.

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