So. Back from seeing comm paed.

[Becaroooo]

God, he was young!

Anyway, he thanked me for my 4 page document which he had read!!

Ds1 is being referred to the EP, OT and SALT.

He asked me what I thought ds1's problems were....I told him. He agrees that dyslexia and dyspraxia are likely and APD. Didnt really agree wrt asd BUT ds1 did nothing asd-ish whislt there - then the minute we left the building was prancing on tip toe and hand flapping...sigh.

He is sending us and the SENCO a questionairre - GUARD (sp???) to fill in to see how high he scores for asd traits so thats something I guess.

He has recommended we continue with the RRT and AIT (which we would anyway) and we are going back in august. Just need to let school know whats happening.

Feel a bit strange

Hi Becaroooo, we are seeing our Son's Paed tomorrow, for yet another medical and more tests, my son is 10 and has been seeing SALT since 31/2 and regular paed appointments until signed of a year ago, no DX other than SLD. Recently APD has been linked to my son via a private SALT assessment, so hence back to the paed. However I find most professionals know very little about APD, so I was curious how your paed thought APD is likely, just curious as we have been waiting for this appt for ages and Ironic his hearing test came through for the day after.
Thanks

what is APD?

apd is auditory processing disorder

Hi Becarooo. You feeling a bit flat? It's a big anti-climax when it's still up in the air. Will he observe your DS at school? With dyslexia, dyspraxia and Auditory Processing Disorder the symptoms can be so similar to ASD that a DX of ASD might be premature. You have things to read up on and anything you have been doing will have been right, so far. ((((hugs))))

hugs becaroooo

Hi becaroooo, good to hear he had read your briefing notes and listened to your concerns. They can only get a snapshot of your dc from a single appointment and its good he's sending out the questionnaires as a starting point for checking whether ASD is likely and hasn't just ruled it out straight away.

It does leave you feeling a bit strange, all those nerves and gearing up for something that is really just the start of something bigger, so you end up, as Ellen said, with an odd sort of anti-climax.

It sounds like a good start though and hopefully things will start moving forwards for you now.

Hi nick Ds1 has been doing retained reflex therapy since March and is starting AIT on Friday.

The paed didnt know what RRT was so I explained and told him what retained reflexes ds1 has (several). He did know what APD was but didnt know what AIT is so I explained that also. (He only knew about the APD dx centre at GOSH in London as he has referred some children there.)

Alot of people have never heard of APD - I know I hadnt til 12 weeks ago!!!!
If you hang around dolfrog might pop on and he is the cats whiskers on APD!!! (I do hope he doesnt mind me saying that???)

AFAIK ds1 will be seen at school by the EP and SALT but am hoping the OT will visit the house...does anyone know if the OT does home visits? The paed didnt.....

He told me that as far as getting a dx of dyslexia and dyspraxia - that a dx is all well and good but schools are struggling to provide the support that is needed. sigh. I'll go into the school and do the 1-1 my bloody self if I have to!

Just feel very odd. I sort of knew what to expect today - thanks to you guys!!! - but I still feel a sense of "oh, here we go......" and that the process has started, but it could take months....we have an appt with the comm paed again at the end of august (during school summer hols) and I was thinking on the way back from the appt.....how likely is it that ds1 will be seen by the EP, OT and SALT before the end of the summer term?????

Still, sounds like quite a good appointment. I think you should be pleased with that.

He won't have ruled out ASD yet. And he will place a lot of store by what the EP observes in the classroom. (Which I agree will probably be next term now.)

I think you'll see the OT in her rooms. Because she doesn't need to observe him interacting with his peers etc.

Good luck with the AIT next week.

Don't worry about 'school struggling to provide the support'. First you need a report from the EP and OT saying what support is needed - then you need to ensure school provide it.

Thanks indigo

Becaroooo

Sounds a good result, it was the result of an inspired paediatrician back in 1998 that we first heard of Central Auditory Processing Disorder (CAPD) as it was known then, took us a while to get all the information together to explain APD to our sons school, teachers, and local support professionals.
For us it has been about finding the medical scientific research that defines and describes the problems, and giving this information to the professionals so that they have to then do their own research to improve their understanding of the wider range of issues that need to be understood.
A Sore Head and brick walls often feature.

I am sure it does dolfrog !
Ds1 starts his AIT on friday....heres hoping.......

Glad things are moving... hopefully quickly.

My son has no dx but feel that he may get similar feedback when we finally see the paed. What sort or support do children with these type of difficulties need in school?

Sorry to hyjack xx

Depends on the severity of their problem I think...some kids get full time 1-1 others get maybe 5 hours or 10 hours 1-1.

I am also looking at ways to help ds1 whilst in class..so have got him a reading rule, an ergonomic pencil and am looking into getting him a wobble cushion to sit on.

Becaroooo

If you are near Kent, I have a round wobble cushion going spare as the school has finally bought their own.......

ben I am in derbyshire but thank you for the kind offer x

Beca, one of ds's teachers recently found wobble cushions in TK Maxx of all places and bought it for him, after the sitfit we bought him went missing during half-term holiday.

Might be worth checking out your local TK Maxx if you have one.

oooh, thanks moose will do x