Please or to access all these features

SN children

Here are some suggested organisations that offer expert advice on special needs.

is not responding to name being in own world only an asd thing?

18 replies

chocjunkie · 19/05/2011 22:01

DD (3.3 with s&l disorder, paed doesn't think it is asd) is having speech & language therapy atm (group therapy).

today the salt asked me in the and if DD has had a hearing test (yes, she did and her hearing is top). salt noticed that DD very often doesn't respond to her name and appears to be in her own world a lot of the time (I have been telling this to the professionals forever but nevermind!)

we saw dev paed recently who thinks DD has s&l disorder and sensory processing issues.

today's conversation with salt made me really worried about asd again. whenever I read about not responding to name etc, it seems to be related to asd. from your experiences, is not responding to name/being in own world something which is related to asd or could this indeed just be part of a s&l disorder and processing issues?

this worry and especially not knowing what is is that causes DD's problems is really starting to do my head in :-(

OP posts:
Toppy · 19/05/2011 22:09

Hi chocjunkie - I have a 3.3 yr old DS with autism and recently had him privately assessed by a SALT for Statementing purposes (ie a really thorough assessment). She is hugely experienced and has worked in S&L units and ASD specific school and spent a lot of time telling me that very often children with SLD present with very autistic traits when they are young and that these often drop away or lessen as their speech develops. She also said it is sometimes worth holding off on diagnosis until the child is a little bit older which I found interesting as it is contra to the view that many of us on the SN boards hold. The fact that the Paed has not diagnosed ASD counts for a lot. Your DD is still very young and you could ask for a reassessment to be booked in for 6 months time - you know how long the waiting lists are so you may as well get on them. Meanwhile have you thought about some top quality OT ?

chocjunkie · 19/05/2011 22:29

hi toppy, we will see the paed again in 7 weeks and he mentioned during the first appointment that he might refer DD for OT. I will put my foot down to get a referral as I think it will really help DD with her sensory issues... though I don't know if they are top quality round here - I hope so!

OP posts:
leiela · 19/05/2011 23:26

My son is 11 with ASD i sware if the world ended he wouldn't notice till he decided it was time to come back to reality. He's never really responded well to his name either ... if you talk to him face to face he's fine but if you call him across a room, or across the garden you stand no-chance yet his hearing is 100% fine.

dolfrog · 20/05/2011 04:31

Auditory Processing Disorder (APD) is a listening disability , which means that those who have APD are not able to process what they hear.
APD is a cause of speech and language problems, and some recent research has suggested that APD can be a factor or underlying cause of Specific Language Impairment (SLI)
APD is also one of the multiple cognitive issues that cause the issues that exist on the autistic spectrum.
So if a child only has APD which is a problem processing what it hears, or not reacting to their name etc then this could be an early sign of APD, or in some cases a sign of APD and the other multiple cognitive problems that cause the behaviours observed by those on the Autistic Spectrum.
This is why there current recommendation for an APD assessment is a multi-discipline assessment by And Audiologist to daignose the APD, a Speech and Language Pathologist to assess the speech and language problems causes by having APD and a Psychologist to assess the problems causes by having to live with APD.

In a research paper published in 2006 Prof David Moore director of the Medical Research Councils Institute of Hearing Research described that in the UK from identical symptoms you can 4 different diagnosis depending on the type of diagnostic professional you are referred to see. An audiologist would diagnose Auditory Processing Disorder, A Psychologist would diagnose Dyslexia, a Psychiatrist would diagnose Autism, and a Speech and Language Pathologists would diagnose speech and language problems. All from identical symptoms. Which suggests that the diagnostic professionals use a very basic maxim "I have a hammer so it looks like a nail" even if they are present with a screw, a tack, or a pin.

pinkorkid · 20/05/2011 09:51

If you've ruled out physical hearing problem, could be auditory processing disorder as dolfrog says. ADHD particularly inattentive subtype could also cause the delay in processing. There is a lot of overlap between some of these conditions.

Also ASD particularly if higher functionning not always that easy to recognise/diagnose at an early age so may not be possible to rule it out categorically.

justaboutWILLfinishherthesis · 20/05/2011 10:05

This reply has been deleted

Message withdrawn at poster's request.

used2bthin · 21/05/2011 08:35

Hi my DD has a diagnosis of SLI and processing and memory difficulties. No ASD and she doesn't respond to her name often unless I touch her or make my voice really high pitched almost singsong. She has glue ear too so for a long while I was convinced it was making her deaf but it has mostly gone and the difficulties aren't going anywhere.

DD is also hyposensitive I think and in fact we have just had a referral to OT as she sometimes doesn't seem to notice the most obvious of noises or can't place them even though it is a familiar sound.

lisad123isasnuttyasaboxoffrogs · 21/05/2011 10:09

but my girls have ASD and neither are great at responding to name. The paed you saw, is he an ASD specialist one? Girls are very hard to dx especially if they would classed as high functioning. I would look at the traid of impearment and see what you think. They need to meet all the areas of difficultly for a dx of ASD.
DD1 has Auditory Processing but DD2 hasnt but has got SPD.

justaboutWILLfinishherthesis · 21/05/2011 10:11

This reply has been deleted

Message withdrawn at poster's request.

lisad123isasnuttyasaboxoffrogs · 21/05/2011 10:51

no sorry shoudl have been clearer, thats why I said look at the traid, its not only this that is a sign of ASD, it can be a sign of other things.

justaboutWILLfinishherthesis · 21/05/2011 11:18

This reply has been deleted

Message withdrawn at poster's request.

dolfrog · 21/05/2011 15:54

used2bthin

Otitis Media with Effusion (Glue Ear) is a way of acquiring Auditory Processing Disorder (APD).
The glue ear causes problems with hearing, and while the glue ear is thee, and after the Glue Ear the long term side affect is APD.
APD is about being able to process what you hear, or having a listening problem. And Glue Ear damages the neurological pathways involved with the processing of all sound based information, which includes speech. This was highlighted in the UK Medical Research Councils Auditory Processing Disorder pamphlet of 2004, which can be downloaded in the form of a pdf files

APD is an underlying cognitive cause of dyslexia, speech and language problems, and one of the multiple disabilities that combine to cause problems on the Autistic Spectrum.
So like me some 13 years ago I had to start investigating the medical issues which were causing the obeservable problems my children were, and still do experiencing. There tends to be no cure for these types of issues so it is about setting up a lifelong support system, as we face lifes ever changing challenges which require many different support options and accommodations.

Gigglebizmizz · 21/05/2011 20:01

My DD had significant glue ear in both ears got vents at age 3. Has massive problems listening responding to questions ans with social interaction was thought she had ASD but just confirmed ADHD- Predominately Inattentive.

dolfrog · 21/05/2011 20:31

Gigglebizmizz

some who have APD are sometimes miss diagnosed has having ADHD, the two conditions have observable areas of overlap, and a full clinical assessment can be required to detect which disability or both is responsible for the problems.
have a look at ATTENTION & MEMORY ASPECTS OF APD
All issues need to be considered, and preferably by a multi - discipline (multi professional) assessment. It is the only way to find the real issues that can trouble our children

Gigglebizmizz · 21/05/2011 20:39

Thanks dolfrog we had a clinical educational pysch assess done but sounds as if we need a multi profess assessment. I have a thread on here unanswered at moment can a clinical ed pysch give a formal dx? Do you know?

lisad123isasnuttyasaboxoffrogs · 21/05/2011 20:46

Im pretty sure ed pysch dont give dx im afraid

dolfrog · 21/05/2011 22:08

Gigglebizmizz

Having founded and help run APDUK for some times now, we were able to lobby for what was considered to be best practice in the USA with regard to the diagnosis of APD from as far back ad the late 1990s. And the Research by the Medical Research Councils Institute of hearing research has confirmed that a multi - discipline approach to these types of clinical assessment and diagnosis is the best way forward as the result will hopefully provide a good overall picture of all of the issues that can be causing problems.
A multi - discipline approach to diagnosis is novel in the UK and we are lobbying fore it to become standard practice. Currently you may have to go around many various types of consultant to identify the real issues, and you may even get a miss diagnosis as i explained earlier.

Great Ormond Street Hospital have lead the APD research in children and are developing and training professionals to be able to participate in a multi - discipline assessment and diagnosis process for APD, which will soon be rolled out the the various regions around the UK. Unforetunately it is all very much pioneering stuff, and we all need to lobby for improvements in diagnostic best practice for our children.

and according to Wikipedia
ADHD is diagnosed via a psychiatric assessment
the Diagnosis Wikipedia ADHD article has had a team of people who have ADHD as the leading editors of this article.

Sairamma · 08/10/2022 04:48

@chocjunkie how did you child get on? Wanted to ask if you had updates. Thank you

New posts on this thread. Refresh page