my ds is having a brain scan

[pokhara]

hi my ds is 5 years old, has language delay and has been under community pead for 3 years, i originally thought autism, the paed disagreed although said he would probably be on the spectrum. Last year after 2 years of assessments, well nothing really just 4 appointments with the paed and him visit school once i decided for 2nd opinion. So seen new paed 2 times now, she has been in school once, see her again end september, she said not classic autism but may be on sepctrum, just a waiting game.
So a new health issue has arisen, a very serious one, chronic bilateral anterior uveits, he is having treatment, we go the hospital each week. Last week we saw a different top consultant, an eye doctor, and he couldn't believe that after 3 years of assessments they are no closer to making a decision on diagnosis, and more shcoked no tests have been done, so he has arranged an mri scan of his brain in june.

So what im asking is, what would they be able to tell me from the scan, can they diagnose from a scan.

Thanks

mri shows the structure if the brain in detail so if something isn't quite right it should show up, they can dx many things from this depending on what the findings are coupled with physical symptoms. The results may show a need for further tests, like blood tests for genetics or eeg etc. Or of course it may come back showing nothing unusual.

I think often if you just turn up with one issue there is no great need necessarily to do major investigations, once you have more than one issue, of course they could be completely unrelated but it's worth investigating to make sure that they are not, which is probably why you've been referred for the mri. I hope that makes some sense.

how's your ds doing, you posted a while back about the uvetis didn't you?

hi thanks, and thanks for remembering.
We have been going every week to the hospital, he is on steroid drops, when they decrease the drops the flare goes back up so they increase the drops, but this causes high eye pressure. The rheumatologist wanted to start him on methotrexate, but the eye doc wants to try and taper slowly the drops over 3 months, if the cells increase they will increase the drops, if it happens 3 or more times over 3 months then they will start him on metho, if not fingers crossed. He doesnt have any obvious affected joints for jia and his bloods seem fine, just a few more bloods they need to do. They said it is chronic and he has had it years, his iris in his left eye is stuck to the lens, they tried dilating drops 3 times a day for 3 weeks and it didnt change a thing, so thats just gonna stay the same.

He isnt bothered at all by it, doesnt ask why people look in his eyes or why the eye drops, just gets on with it. Vision support came into school last week (he is in an inclusion base for his learning difficulties) and confirmed he has a colour defiency which we knew and they are going to closey monitor him for anyting extra he may need in school. Some days his vision is perfect but the next he walks into everything and keeps blinking to get his vision.

Its been a stressful 8 weeks, it seems like 8 months not 8 weeks, but we have got a lot done in those 8 weeks.

The hospital we were first under had never seen a child with uveitis and sent him away to come back 6 weeks later, so i took him to another hospital that had a eveitis clinic, took him the a&e and they sent him to the eye clinic and he was started stright away on drops and we have been back every week since.

Thanks so much for asking

take care