Hi - sorry this is going to be long but I'd really appreciate some thoughts or advice.
DS is 2.5 this month he has severe GDD - my friends' NT children of the same age are all starting pre pre school this Sept, either at community, church or Sure-Start run play groups - some for just a couple of days a week, others ever day. I have been investigating since March the possibilty of a similar place for DS but keep getting hit with brick walls.
There are 12 such groups in our area none of which can take him. We have visited the two local SN schools - one of which said a definite no but they would take him next year for a proper nursery place. The other said there seemed to be a definite need for this as I wasn't the first to approach them but the ELB (our LEA I'm in NI) had no statutory requirement to provide a place for under threes and in these times of austerity we would be unlikely to get a place for him.
It was suggested to me that he is being discriminated against based on his disability and that the ELB will have to fund a place for him somewhere but that this can't be decided until his statement is in place? Is this right? The statementing process has only just started.
OK - this is where it gets complicated. There is a brilliant SN nursery run by a local charity and funded by health trust 'A' - our house is located in health trust 'A' but our area used to be located in another trust area which no longer exists as all the small trust areas eg B C D E came together to join A and make one big health trust. Anyway the nursery only accepts from certain 'legacy' trust areas e.g. C and E and we live in what used to be B. So basically DS can't be considered for that reason even though it's now all one health trust. Again all phone calls have led to a dead end. We don't really know where to go from here - do we just wait for the statement or keep pestering...any advice much appreciated!