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Here are some suggested organisations that offer expert advice on special needs.

Length of time to assessment

31 replies

nenevomito · 13/05/2011 17:37

I could really cry right now. Just got home from work to a letter from the clinical psychologist accepting DS onto his waiting list for referral and it says it will be at least 10 months!

10 bloody months. I asked for the referral in Feb, so it will be 13 months from me seeing the GP to getting him assessed. I'm just so frustrated with the whole thing.

Ringfencing the NHS my backside. The funding to the service has been cut and now I have to wait that bloody long for him to see someone.

Angry and :( all at the same time.

OP posts:
bumblingbovine · 16/05/2011 14:51

Sorry Guys

I meant to start my own thread!

Since I am here anyway, we asked for a referral from our GP in June of 2010 and we are still in the process of assessment now. We still do't have any real answers. So for us it has been almost a year

EllenJaneisnotmyname · 16/05/2011 14:52

Hi bumblingbovine, sorry just off on school pick up. I think you'll get more advice specifically for your issues if you start your own thread. People may not spot you here. Smile

EllenJaneisnotmyname · 16/05/2011 14:53

Oops, crossed.

TooOrangeyForCrows · 16/05/2011 15:08

Babyheave, If you are thinking ASD, it might be worth seeing if there is a local Autism Support group (search local groups on the NAS website). If there is one, they will be able to tell you ALL about how the local system works for diagnosis etc. Really helped me.

DiamondDoris · 13/09/2012 19:12

No dx of ASD from an ADOS test, despite overwhelming ASD traits.

My DS (aged 6) was assessed for ASD by an ADOS test in March this year. It was only carried out by a SALT while I sat in another room answering questions from a paediatrician. Both procedures were 45 minutes duration and then the SALT came into the room with my DS, sat down and said, he scored "quite well" in all the activities so he is not on the autistic spectrum, but has learning difficulties. I was upset that what he told us completely contradicted what I had told the paed. There was no consultation. I felt as though it was a snap decision. It was also classed as multidisciplinary (why???). I got a report a bit later, which was just going over what I had told the paed - no scoring, nothing whatsoever about how my son did in the tests. Much of the report centred around my bipolar disorder, and little to do with my son. My social worker has contacted this paed and she told the SW that my opinions were "one sided" and that he was learning disabled and because of this he had ASD traits - I would have thought that ASD might explain his social and communication and learning problems! He has an amazing memory, countless sensory issues, hypermobility problems to name a few. I've listed all his ASD traits and he seems to have 90% of them. He's a very tactile, loving child who takes to people quite well. I am currently appealing. I suppose what I am asking is, a) was this the right way to go about an assessment and b) anyone else experienced this? We are in Kent and I have heard from SW that Kent are very bad at diagnosing/or reluctant to diagnose. I feel lost.

DiamondDoris · 13/09/2012 19:13

Oops, sorry thought I was starting a new thread :?

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