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SN children

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september 2008 mamas, i can't find the last thread we had with eachother.

36 replies

eandz · 11/05/2011 11:29

I kinda need to channel the few of you again, I feel like you're my closest friends in England.

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Triggles · 12/05/2011 11:52

eandz - definitely understand. As soon as I mentioned DS2's ASD to my sister in the states, she immediately starting harping on about diet this and diet that.. gluten free... no chemicals...no junk food... no e numbers... no this .. no that... blah blah... and how I should talk to so-and-so's wife as she's got ASD... (apparently that makes her an expert on my 4yo? Hmm).. and so I had to put the brakes on it right there. Said "sorry but we have medical professionals here that I trust, and we'll use our own judgement about what other things we implement, so kindly don't bleat on about it." Blush My sister is rather know-it-all and pushy and claims to know everything about everything... or so she thinks.... Hmm

We've tried the fish oil/omega 3 stuff (hidden in his morning orange juice) and have noticed a slight improvement (or should I say after having him on it awhile, we REALLY noticed a difference when we took him off it for a few weeks!! Grin). So we'll keep that going. We've discussed the gluten free bread and may try it next for a specific period of time. If no changes, then that will fall by the wayside. But he has such an issue with food as it is, we're not about to upset the apple cart and end up with a child that won't eat at all!

I've finally gotten my DH to understand that I don't want to go get headache medicine when I have a headache, I want it available at home when I need it. So stockpiling is not all bad! We have ibuprofen, paracetamol, nurofen, calpol, nurofen for children, anti diarrhea medicine, stuff for gas/wind, stuff for upset stomach (like pepto bismol?), first aid stuff (bandaids/plasters, antibiotic ointment/cream, bandages, tape, gauze wrap), codeine, prescription strength ibuprofen, vicks vapor rub, cough syrup (couple different kinds), allergy meds, sinus meds, plus a few other bits and bobs.Blush And I do miss buying those huge bottles of tylenol - buying a few small packets at a time of pain relief tablets makes me want to pull my hair out. It is by far the most ridiculous thing I've ever heard of... if someone REALLY wanted to off themselves, they could just go to a couple different stores and get more. What nonsense.

Just hang in there. I think we ALL feel a bit odd most of the time. Grin

Becaroooo · 12/05/2011 12:40

eandz

You are arent being oversensitive, and its not because you are from the US either! Smile

I am not really sure what to advise re: nursery. What is the key worker to child ratio there? I know from my experiences with ds1 that the start of nursery can trigger all sorts of viral and bacterial illnesses that N wont have resistance to (like CP, tonsiltiits, gastroenteritis, ear infections etc) Interestingly, ds1's excema got worse after starting nursery too - I put it down to them using paints/playdoh/sand etc which was proabably not that clean!!!

I would hate to think what a SW/HV would think of our medicine cupboard!!! Shock Grin It is chock full of stuff...for dh (asthmatic and has excema), me (got so many things wrong with me its almost funnny) ds1 (asthma, excema) and ds2 (excema) add to that pain relief for all of us, hayfever stuff for all of us, first aid kit, various eye drops, creams, ointments, anitseptics etc etc etc

So, I wouldnt worry too much about that..I am assuming that apart from the pain meds and first aid kit that the rest is prescribed??? If so, what are they worrying about? Hmm

I think the other childs mothers attitude was not nice, but hey, we all have to deal with unpleasant people and IME other childrens parents can be a minefield I am quite sure I may have unintentionally offended/upset people in the past. I have certanly never done it intentionally. I know that I have been deeply offended/upset by the comments/attitudes of other parents wrt to ds1. I guess I have developed a thicker skin that you E as I really dont give a flying fuck anymore.....

You are doing the absolute best for your boy - you are getting him assessed and he is getting therapy. I do question why HCPs seem to think that nursery/pre school is so essential for SEN/SN kids....IME its not always beneficial at a young age and indeed can sometimes be harmful Sad

If N is that unhappy, maybe re think? Look at other providers of care?

Wrt the house and cleaning.....I do what I can. Dh helps when he can (not often) and we muddle along. It really helps sometimes to de clutter (freecycle/e bay stuff you dont want/no longer need) and try and get into a routine of certain tasks on certain days...so for example, if Ns dad can take him out to the park on a certain day, leave the jobs you cant do with N there until that day IYSWIM??

I wish I had an answer for you wrt the intimacy thing....sigh. Its something dh and I are struggling with atm tbh. I am just so drained - in every way - from dealing with ds1 and ds2 and the house and everything else that at the end of the day I just have nothing left. He has been understanding up to now (and he is pretty tired too tbh) but I do wonder how much longer we can go on like this....

Ds1's anxiety issues now mean that at bedtime we all have to get into our PJs (he has lots of sensory issues too) and dh has to sleep in his bed with him most of the night and ds2 always seems to end up in with me at some point during the night so its not exactly condusive to romance! Smile

We are hoping that if ds1 gets a dx (we see the comm paeds on 23rd) that he will - al last! - get some help and it will decrease his anxietes and help his sleep...god what I would give for 4 hours uninterupted sleep!!!!!!

Its been a tough few months for us and the next few probably arent going to be much better Sad but we do the best we can.

Be kind to yourself x

StarlightMcKenzie · 12/05/2011 12:41

Leonie's been banned LOL. If you want her FB contacts let me know and I'll ask if if that is okay.

Becaroooo · 12/05/2011 12:41

...has N seen a nutritionist?

ds1 started on omega 3 oil in the past month so we will see if that helps........

Becaroooo · 12/05/2011 12:56

star why has she been banned??? Shock

StarlightMcKenzie · 12/05/2011 13:02

Not sure. I think it might be for her views on the McCanns but don't really know.

Triggles · 12/05/2011 17:20

the McCanns? Is there actually a current thread going on them?? Or has she been banned awhile and I'm not very observant? Confused

eandz · 12/05/2011 17:22

does free speech not exist in the UK?

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Triggles · 12/05/2011 17:29

well, yes, free speech does exist, but forum do have terms and conditions that all posters have to adhere to....

eandz · 12/05/2011 19:27

oh yeah, no defamation/libelous/mean spirited talk allowed. Eh, I guess I understand.

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eandz · 13/05/2011 15:10

okay, so first things first!

becaroo star auntevil

I am SOO very glad I'm not the only one who stockpiles medicine. It's just hard not to!

Secondly, I don't know how I feel about the nursery. Usually they seem to care for N quite well and when I get him they all do seem to generally care for my boy. I don't know if it's genuine, I can't tell. I was upset about him coming home not in his own clothes, but since I raised the issue, They made sure to return his clothes and made sure to highlight his bag so all the other staff will know where it is. Regarding his food allergy, I did have a word (I'm sure I was trying to be rational when I was speaking to them, but I'm sure I was angry).

I do feel like if the above ever happens again I will take him out and eat someone alive. The allergy advice is good stuff, thank you for the link.

I hate when all of a sudden everyone is an expert on Autism. EVERYONE! I hate it. It's annoying and incredibly detrimental to me. Thank you Triggles, you also made me feel better about how everyone seems to give me needless info. I haven't tried the omega oils yet, but N eats tons and tons of salmon.

I don't know about the other mother, and I don't care anymore! I just want to know how to handle

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