Back from paed apt, got diagnosis at last :0)

[brandy77]

Paed basically said shes in no doubt that my 6.5 year old son has ASD (possibly aspergers). Son was very good considering apt was delayed by 45mins, he was his usual in your face talkative and she asked him a few questions to see if he showed empathy and he didnt . Can he be taught empathy? Must admit I didnt think he was emphatic as hes always laughed hilariously if ive stubbed my toe or fell over etc.but if he hurts himself, even a scratch and he screams in agony and goes on about it for days on end.

She said he needs a statement for schooling so that will help as we are in the assessment process now. My mum was upset actually hearing it, but i told her hes still the same boy now just got to try and find a suitable school for him. Paed is having a meeting with the EP too finalise a diagnosis then I get called back to discuss it, she doesnt think till July though.

Sad thing is that even though hes needed a lot of hospitalisations or his medical problems, hes actually probably been admitted and had tests unnecessarily when hes continuinally moaned about aches and pains I wish now that the medical problem hadnt been blamed for the behaviours.

I asked loads of stuff that Ive read off here, so thankyou xx

Hi Brandy
I guess the diagonosis was nothing you weren't already expecting but hopefully it will open a few doors to the help your son needs.

I'm sure your mum is just in a bit of shock and will soon realise that the dx doesnt change who your little chap is.

Getting a dx is great news.

Hope things get better now that you have a better idea of what you're facing...

my ds saw paed last year and said possible asd reffered him for SALT and ed pyscs as it has to go to a multidisciplinary panel (ASD panel) for official diagnosis, has he not mentioned this to u??

I know what you mean Brandy about 'hanging' dx onto already confirmed issues. It's easier for them to do this than look at each child individually.
Your mum was probably upset for you - and how you will feel about the news. But she's a mum, she knows her grandson is the same loveable lad. She probably needs to let the information sink in for a while. Dxs affect different members of the family in different ways. Some that you think would be dismissive can totally come around, others will always bury their heads in the sand.

hi lisa, this was part of the multi disciplinary team for the statement, hes had the EP's observations/reports CAMHS, his paed in london and this one today, dont think he could see anyone else. shes referring to OT and SALT, she actually said shes in no doubt that he has ASD from all the gathered information/reports/assessments and todays visit. I dont think anyone has been missed out? or have they?! shes having a meeting with the EP to put formal diagnosis in writing and then meeting with me, by the time that happens I would have got the statement OR not by then

Thanks auntevil

Hi Brandy. It's never great news but it is a Good Thing. It will help you to be sure you are and have been doing the right things. (((hugs))) for you and your mum.

that must be a relief brandy

Brandy can I pm you?

hi kcornsilk yes you can pm me
thanks ellen
leningrad, i asked the paediatrician about PDA she dismissed it and said that its a new name that is being banded about. She said the spectrum is vast and ASD is the diagnosis that she would give and he wouldnt get labelled with PDA as Id told her that I didnt want him labelled with something that wasnt right, especially having the word pathological in it, makes our poor children sound like mad people! As for the stubbed toes, had this again tonight! My son stubbed his toe and got absolutely hysterical, crying that he couldnt walk, that i just didnt understand his pain and that he might have broken his toe and he wouldnt be able to go swimming tomorow because if he jumped in the water and hit his toe the pool would fill with blood and everyone would scream and jump out, bless him. When he calmed down, I told him to remember the pain for next time i stub my toe! He laughed and said mine definitely wouldnt hurt as bad as his. He hopped to bed,lol.

My son loves war and follows the news about Bin Laden and Gadaffi. The paed whispererd that she wanted to see if he showed empathy and asked him if it was fair that Bin Ladens son got shot when he hadnt done anything wrong, my son answered, well he shouldnt have lived in the house with Bin Laden then should he. She asked him if he felt sad for the son and he said no

thanks brandy have pmed you