Pick a syndrome!

[AlisonJP]

Have a look at today's blog entry and let me know if you can relate to what I have said.

2emumuk.wordpress.com/2011/05/10/pick-a-syndrome/

Thanks,

Alison

I think I always looked at my son's diagnosis as a key to unlocking the best ways to help him manage, and not as a source of despair and anxiety.
Me was highly aggressive, sensitive to certain things, explosive without warning and insensitive to the feelings, expressions and opinions of others.
Once he was diagnosed with Asperger's, the thousand piece puzzle had a name, I could start looking at support and strategies and talk to others for tips and ideas.
Rather than seeing him as badly-behaved and rude. It also changed other people's perceptions of him, and increased their willingness to be proactive and consistent.
So yes, I can relate to what you say, but I'm on the other end of the see-saw.

I can agree with you from a post diagnosis point of view but the blog is running quite a bit behind at the moment.

I still think that diagnosis is a mixed blessing and whilst the initial reaction was relief and understanding we very soon realised that this was only part of the picture. Even within one diagnosis, there is a huge range of symptoms and behaviours.

Our dd is diagnosed with Dyspraxia but quite a lot of the symptoms just don't apply. e.g. dyspraxic children can have memory problems and yet dd was assessed to have an age equivalent memory of 18 - eleven years ahead!

Well, you asked for people to look at the blog, so that's what I did. I didn't realise it was out of date.
We are almost 8 years post dx, DS is now doing his GCSEs,
So I've had quite a while to understand that it's a complex picture.
Wait until she hits puberty, the mix changes again.

LOL Goblinchild! I've only just started writing it and wanted to start at the beginning. We only got the diagnosis a couple of weeks ago and it feels like a lifetime!

not in my case my son was left for years floundering and being labeled by teachers and TAs so having a profesional dx helped him recieve what had been lacking for many years which resulted in very low seld esteem and being bullied at school, profeshionals one would hope use the term loosly there lol know as do everyone concerned that every child IS different and not all the rules apply i hear what your saying but have to agree totally with Goblinchild on this one perhaps it depends to what extent your childs MS school has been like with DCs with sen my experience at pre school first and two middle schools was very very poor indeed and now my son is very behind accademically and emotionally due to their reluctance to put their hand in their pocket basically , i hope now with the help he deserves and understanding (hes 11) he will improve especially in social situations and i agree as with even NT DCs puberty is challenging to say the least and i think my DS(ASD) is begining to go through that now the signs are there as david frost used to say on through the keyhole lol

Ds's dx came as a relief, an explanation, something to research so as to investigate strategies and programmes but he was always ds who had autism rather than autistic ds.
Dd's dx was just confirmation of what I already knew tbh.
Ds1 (not the one with autism) has dyspraxia and we used to go to a dyspraxia group and he was quite unlike the majority there.Yes he was clumsy, disorganised, uncoordinated but he is laid back, good natured,with a fantastic memory and incredibly sociable so it takes all sorts I suppose.
Incidentally ds and dd have the same dx but they are like chalk and cheese as well